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Nolan, Mike

Towards a more inclusive vision of dementia care practice and research

Drawing on recent literature this article explores the development of research with family carers and people with dementia and identifies a number of themes that have emerged over time. It raises fundamental questions about the nature and purpose of research and the balance of power between researchers, family carers and people with dementia. Existing notions of expertise and knowledge are called into question and the article concludes with a call for a more empowering and inclusive model of research and practice based upon a relationship-centred approach to care.

Thu, 07/20/2017 - 15:23

Working with family carers of people with dementia: 'negotiated' coping as an essential outcome

Supporting family carers is likely to remain at the forefront of community care policy in dementia care for the foreseeable future. However, despite extensive research in the area there is little evidence for the effectiveness of current interventions. Using data from an Australian study of how carers of people with dementia cope with the challenges they face, this article calls for a re-appraisal of the ways in which a successful intervention is defined and promotes an approach based on partnership in which carers themselves play a significant role in determining 'what works'.

Thu, 07/20/2017 - 15:23

Supporting family carers in the UK: overview of issues and challenges

Support for family carers is currently a policy priority in both health and social care. However, despite the launch of the Carers' National Strategy there is a need for further innovation if services are to be optimally effective. This article identifies a number of issues and challenges for the future if family carers are to receive the type and level of support they need. It highlights the need to think more clearly about the intended outcomes of services supporting carers and about the range and type of interventions that should be provided if such outcomes are to be achieved.

Thu, 07/20/2017 - 15:20

The impact of information and communication technology on family carers of older people and professionals in Sweden

Government policy in Sweden, as in other developed countries, pays increasing attention as to how best to support the family carers of older people. New and innovative means of support, such as information and communication technology, are emerging. This paper explores the perceived benefits of, and barriers to, information technology as a means of supporting family carers of older people.

Thu, 07/20/2017 - 15:20

'Making the move': relatives' experiences of the transition to a care home

Despite a growing awareness of the significance of helping a relative to relocate to a care home as a key phase in the caregiving career, relatively few studies in the UK have explored this experience in depth. The research on which the present paper is based sought to better understand experiences of nursing home placement from the viewpoint of relatives. The study was informed by a constructivist perspective. Data were collected in 37 semi-structured interviews involving 48 people who had assisted a close relative to move into a nursing home.

Thu, 07/20/2017 - 15:13

Development of the Carers' Alert Thermometer (CAT) to identify family carers struggling with caring for someone dying at home: a mixed method consensus study

There is an increasing international policy direction to promote home death for dying patients which will impact on the demands placed on family carers. The early identification of carer needs and appropriate intervention can help avoid crisis situations for the carer and avoidable hospital admissions which are reported to be a global concern. The aim of the study was to explore what professionals and carers of patients with cancer and advanced progressive illness, in their last year of life, find burdensome and to develop an alert system for use by non-specialist staff. 

Thu, 07/20/2017 - 15:10

Negative impact and positive value in caregiving: validation of the COPE index in a six-country sample of carers

Purpose: The present study attempts to further validate the COPE Index on a large sample of carers drawn from six European countries. Design and Methods: We used a cross-sectional survey, with approximately 1,000 carers recruited in each of six countries by means of a common standard evaluation protocol. Our saturation recruitment of a designated quota of carers occurred by means of several channels, in identified geographical zones within countries.

Thu, 07/20/2017 - 15:09