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Validation of two short versions of the Zarit Burden Interview in the palliative care setting: a questionnaire to assess the burden of informal caregivers

Purpose: Several validated outcome measures, among them the Zarit Burden Interview (ZBI), are valid for measuring caregiver burden in advanced cancer and dementia. However, they have not been validated for a wider palliative care (PC) setting with non-cancer disease. The purpose was to validate ZBI-1 (ultra-short version and proxy rating) and ZBI-7 short versions for PC.

Wed, 01/20/2021 - 11:46

Schizophrenia, social support, caregiving burden and household poverty in rural China

Purpose: Household poverty associated with schizophrenia has been long described. However, the mechanisms by which schizophrenia may have influenced the economic status of a household in rural communities are still unclear. This study aimed to test an integrated model of schizophrenia, social support and caregiving burden on household poverty in a rural community in China. Methods: A mental health survey using identical methods and ICD-10 was conducted in six townships of Xinjin County (population ≥ 15 years old, n = 152,776), Chengdu, China in 2015.

Mon, 12/14/2020 - 13:22

Psychometric properties of the FACT-G quality of life scale for family caregivers of cancer patients

Purpose: This study aimed to examine psychometric properties of a caregiver version of the well-established Functional Assessment of Cancer Therapy-General Scale (FACT-G) after conducting focus groups and obtaining expert input. Methods: We made minor wording modifications to the Patient FACT-G to enable caregivers to report how the illness affected their overall quality of life (QOL) and well-being on four subscales (physical, social, emotional, functional).

Sun, 12/13/2020 - 17:25

Psychometric characteristics of the WHOQOL-SRPB Scale in a population of stroke survivors and caregivers

Purpose: Studies have shown that spirituality plays an important role in enhancing the quality of life of stroke survivors and their caregivers. Spirituality has been associated with positive patient and caregiver outcomes, so a valid, reliable measure of spirituality is important. It has not been tested with stroke survivors and their caregivers, so the aim of this study was to evaluate the validity and reliability of the World Health Organization Quality of Life Spiritual Religious and Personal Belief (WHOQOL-SRPB) scale for stroke survivors and their caregivers.

Sun, 12/13/2020 - 17:21

Pilot Study of a Video-Based Educational Program to Reduce Family Violence for Parents of Adult Children with Schizophrenia

This pilot study evaluated a video-based educational program for improving communication skills and reducing family violence between parents and their adult children with schizophrenia. We used a one group pretest-posttest design. The program included a main 90-min video and six stories, each 20–30 min long. We made assessments at baseline and program completion (three months after baseline). Sixty-six parent participants completed the intervention.

Sat, 12/12/2020 - 15:11

Pilot study of a telehealth perioperative physical activity intervention for older adults with cancer and their caregivers

Background: Older adults undergoing cancer surgery are at greater risk for poor postoperative outcomes. Caregivers also endure significant burden. Participation in perioperative physical activity may improve physical functioning and enhance overall well-being for both patients and caregivers. In this study, we assessed the feasibility of a personalized telehealth intervention to enhance physical activity for older (≥ 65 years) gastrointestinal (GI) and lung cancer surgery patients/caregivers.

Sat, 12/12/2020 - 15:07

Investigating the Smoking Cessation Informational Needs of Cancer Patients and Informal Caregivers

Continued smoking at the time of a cancer diagnosis can severely impact the efficacy of cancer patient treatment and survival. The time of diagnosis can serve as a "teachable moment" for smoking cessation education, since patients may be receptive to discussions about quitting. Caregivers may have a pivotal role in supporting patients with their cessation efforts. The purpose of this study was to identify the smoking cessation informational needs of cancer patients and their caregivers.

Fri, 12/11/2020 - 13:42

Informal Elderly Caregiving and Time Spent on Leisure: Evidence from Time Use Survey

This paper examines the risk of time poverty defined as leisure participation among informal caregivers of adults and older people. We draw on the most recent time use survey conducted in Poland, which incorporated more than 28,000 households in 2013. We assess the extent to which caregivers are more likely to experience shortages of time spent on physical activity, hobbies, and social life. Additional information about respondents' time preferences allows us to examine not only the objective and relative time deficits of caregivers, but also the subjective and expressed ones.

Fri, 12/11/2020 - 12:14

Having caregiving responsibilities affects management of fragility fractures and bone health

Summary: In this secondary analysis of six qualitative studies, we found that approximately one-quarter of individuals with fragility fracture were serving as informal caregivers. The caregiving role appeared to be a cause of the fracture for some and was prioritized over bone health, acting as a barrier to bone health management.

Mon, 12/07/2020 - 16:18

Financial toxicity associated with a cancer diagnosis in publicly funded healthcare countries: a systematic review

Purpose: Financial toxicity related to cancer diagnosis and treatment is a common issue in developed countries. We seek to systematically summarize the extent of the issue in very high development index countries with publicly funded healthcare. Methods: We identified articles published Jan 1, 2005, to March 7, 2019, describing financial burden/toxicity experienced by cancer patients and/or informal caregivers using OVID Medline Embase and PsychInfo, CINAHL, Business Source Complete, and EconLit databases.

Mon, 12/07/2020 - 15:15

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