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An exploration of family carers' experience of respite services in one specialist palliative care unit

Background: Changing patterns of care for terminally ill people mean that 90% of patients in the UK now spend the majority of their last year of life at home. It is now widely accepted that supporting individuals to die at home relies heavily on the availability of family carers to provide the majority of the care needed. However, one of the most common reasons for unplanned admissions near the end of life is carers’ inability to provide continuing care. One strategy to overcome these challenges has been to offer planned respite care.

Thu, 07/20/2017 - 15:08

Special Needs: Caring for the Older Adult with Down Syndrome

Over the last 30 years, the life expectancy of people with Down syndrome has increased dramatically. Significant medical advances have allowed affected persons to be seen more in the hospital setting, making it imperative that nurses understand their health care needs in order to provide positive health outcomes.

Thu, 07/20/2017 - 15:08

A preliminary typology of caregivers and effects on service utilization of caregiver counseling

Objectives: Caregivers (CGs) of older adults have unique and diverse needs for intervention. The present studies describe the characteristics of CGs and caregiving situations and how these relate to CG therapy utilization patterns in a community mental health setting.

Thu, 07/20/2017 - 15:08

Burden on family carers and care-related financial strain at the end of life: a cross-national population-based study

Background: The rising number of deaths from cancer and other life-limiting illnesses is accompanied by a growing number of family carers who provide long-lasting care, including end-of-life care. This population-based epidemiological study aimed to describe and compare in four European countries the prevalence of and factors associated with physical or emotional overburden and difficulties in covering care-related costs among family carers of people at the end of life.

Thu, 07/20/2017 - 15:08

Matter of discourse

Caregiving within families is often complex and can be fraught with relationship difficulties. Paying attention to the way people speak about care, relationships and difficulties can shed light on how practitioners can fruitfully work with caregivers and care-receivers. Looks at how a sound understanding of language through discourse analysis can help social workers in their practice.

Thu, 07/20/2017 - 15:08

Young carers and end of life services

In 2009, the NHS National Centre for Involvement and Liverpool Primary Care Trust undertook a national pilot project to establish how best to undertake patient and public involvement in respect of end of life (EOL) services. This article describes the outcomes from its sub-project which focused on young carers. It is projected that there are substantial numbers of young carers in the UK, at any one point in time, supporting their (grand)parents, or other adult family members, during their terminal illness.

Thu, 07/20/2017 - 15:08

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