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The Invisibility of a Family Caregiver

During the past five years, I have had the opportunity to meet and hear from many people who felt invisible. These individuals are among the 40 million family caregivers in the United States who are providing unpaid care to a parent, spouse, partner, friend or neighbor.

Tue, 10/01/2019 - 10:14

The Hidden Health Crisis: What Family Caregivers Want You to Know

I looked at the diagnostic specialist and burst into tears. She had seen other women like me and knew what was wrong with my shoulder. Finally, after 14 months of being tossed between physicians, specialists, and physical therapists and many misdiagnoses, I had an answer: frozen shoulder. It explained the extreme pain in my shoulder along with the stiffness and inability to move the shoulder joint. This condition takes 1 to 3 years to resolve, and there is little that can be done to relieve the pain or force the shoulder to move. 

  1. MaryAnne’s Story

Tue, 07/02/2019 - 14:29

Forgotten Family Caregivers

The purposes of this article is to discuss the topic of family caregiver recovery and inspire further development of the concept to promote greater awareness of the process of caregiver recovery in order to guide healthcare professionals to better serve family caregivers. 

Tue, 06/25/2019 - 12:09

A 'gaping hole' in US health care? Millions of caregivers are overlooked

Caregivers in the United States face significant economic loss and stress to care for their families and friends during and after medical treatment, a fact that highlights a "gaping hole" in the U.S. health care system, Aaron Carroll, a professor of pediatrics at Indiana University School of Medicine, writes for the New York Times' "The Upshot." Another study published in Cancer in 2009 found that two-year caregiving costs exceeded $72,000 for lung cancer, $66,000 for ovarian cancer, $59,000 for lymphoma, and $38,000 for breast cancer. The U.S.

Fri, 06/07/2019 - 11:33

Caregiving benefits: Expanding the conversation beyond paid leave

More companies offer paid leave to caregivers Research from Genworth, the National Business Group on Health and MetLife all confirm that caregivers in the workplace are facing challenges ranging from absenteeism, presenteeism and emotional distress to physical health issues and financial burdens. From caring for loved ones with serious health conditions and sick children to maternity and paternity leave and even mental health days, a paid leave program is the mark of many forward-thinking organizations.

Fri, 06/07/2019 - 11:06

Expanding Knowledge: From workshops to educational materials, PVA Education Foundation grants help improve the lives of those with SCI/D, their families and caregivers

The article reports on the number of grants given by the Education Foundation of the Paralyzed Veterans of America (PVA) that will deliver knowledge through person-to-person interactions at conferences and symposia. It outlines the six categories in which education grants can be awarded. It notes that the next Education Foundation grant cycle will be open on September 1, 2018.

Wed, 06/05/2019 - 13:41

People caring for older and younger relatives at higher risk of mental illness

More than 1 million people who are caring for children and older relatives are at a significantly higher risk of mental health problems and more likely to be struggling for money than the general population, official data has revealed.

The “sandwich generation” who find themselves squeezed between older and younger dependents account for 1.3 million people, according to the Office for National Statistics (ONS). It found the more care people give to both older and younger relatives simultaneously, the more likely they are to report symptoms of mental ill health.

Sun, 05/05/2019 - 19:56

Healthcare and the Co-creation of Value: Qualifying the Service Roles of Informal Caregivers

The study advances the debate on the co-creation of value in healthcare by treating the informal caregivers as a key organizational resource for the providers. Using the Dialogue, Access, Risk, and Transparency (DART) model developed by Prahalad and Ramaswamy as an interpretative key, this qualitative paper frames the role of the informal caregivers within the multiple experiences of value co-creation in which they are engaged. The central argument is that the informal caregiver performs three intersecting key roles: patient's advocate, system navigator and coordinator of care.

Fri, 04/12/2019 - 15:28

Is it time to create a new nurse role dedicated to helping carers?

Informal carers play a vital role in enabling people with ongoing support needs to be cared for at home, but this has a negative impact on carers' own health and wellbeing. Although community nurses are well placed to identify and support carers, falling numbers of district nurses and the increasing needs of an ageing population mean they have limited time and so focus on patients. This article proposes the creation of a 'carer support nurse' role entirely dedicated to supporting carers.

Wed, 04/10/2019 - 13:32

Innovative employers enhance caregiver benefits

[...]by 2040 the percentage of people aged 65 and older will have nearly doubled to nearly 22%, up from 13% in 2010. According to the Families and Work Institute’s 2016 National Study of Employers, 42% of employers offer elder care resource and referral services and 78% provide some amount of either paid or unpaid time off for employees who need to care for aging relatives. [...]25% of all family caregivers are younger millennials and 50% are under the age of 50.

Wed, 04/10/2019 - 10:05

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