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A9h

Guidelines for a palliative approach for aged care in the community setting: A suite of resources

In Australia, many people ageing in their own homes are becoming increasingly frail and unwell, approaching the end of life. A palliative approach, which adheres to palliative care principles, is often appropriate. These principles provide a framework for proactive and holistic care in which quality of life and of dying is prioritised, as is support for families. A palliative approach can be delivered by the general practitioner working with the community aged care team, in collaboration with family carers. Support from specialist palliative care services is available if necessary.

Thu, 07/20/2017 - 15:11

Caregivers’ estimation of patients’ quality of life (QoL) in Alzheimer's disease (AD): An approach using the ADRQL

The purpose of this study was to describe the QoL of patients with AD (PAD) as perceived by family caregivers, and to analyze the correlates of such QoL. This study covered 92 PAD enrolled in a cognitive-motor stimulation study. The severity of cognitive impairment ranged from mild cognitive impairment to severe dementia. QoL was measured using the AD-related quality of life (ADRQL) scale. Social and clinical variables (for both PAD and caregiver) as well as other variables relating to cognition, activities of daily living (ADL), behavior, mood and caregiver burden were recorded.

Thu, 07/20/2017 - 15:11

Caring and women's labour market participation

The impact of caring on the income and labour market participation of carers can be substantial. In this article, the authors describe the labour force status of carers who receive an Australian Government payment directed to carers, with a particular focus on the degree to which non-employed carers want to be in paid employment.

Thu, 07/20/2017 - 15:11

A questionnaire to measure satisfaction with community services for informal carers of stroke patients: construction and initial piloting

Stroke affects 120 000 people each year in the UK and is the most common cause of adult-onset disability. Most stroke patients are cared for at home by informal carers. Support for these carers is provided by the community services, but although single-item measures have shown that there is a relatively high level of dissatisfaction with those services, there is no specific satisfaction measurement instrument. The present study aimed to construct and initially validate a questionnaire to measure carers’ satisfaction with community services for clinical and research purposes.

Thu, 07/20/2017 - 15:11

The role of telemonitoring in caring for older people with long-term conditions

Long-term conditions have a negative effect on the lives of older people and those who care for them. As the population ages, so the prevalence of long-term conditions increases, which presents substantial challenges to providers of health and social care. This article examines how telemonitoring could help to meet some of these challenges. Telemonitoring involves patients at home recording vital signs, for example, blood pressure and pulse, and transmitting this information electronically to nurses based elsewhere.

Thu, 07/20/2017 - 15:10

'They just don't get it.'

Young adult carers experience significant disadvantage as a result of their caring responsibilities--not least in education. While there is some creative and flexible provision out there, the author stresses that too often providers fail to take account of the specific needs and responsibilities of young carers. The author presents the comments made by young adult carers who participated in focus groups and interviews as part of recent NIACE research, "Access to Education and Training for Young Adult Carers," funded by the Nuffield Foundation.

Thu, 07/20/2017 - 15:10

“I Can’t Go to School and Leave Her in So Much Pain”: Educational Shortfalls Among Adolescent ‘Young Carers’ in the South African AIDS Epidemic

“I go to the hospital with my mother when she is sick. I can’t go to school and leave her in so much pain. I won’t concentrate.” Millions of adolescents live with AIDS-affected parents or primary caregivers. Little is known about educational impacts of living in an AIDS-affected home, or of acting as a “young carer” in the context of AIDS. This study combined qualitative and quantitative methods to determine educational impacts of household AIDS-sickness and other-sickness.

Thu, 07/20/2017 - 15:10

Young Carers in the UK

Discusses the "Young Carers in the UK: The 2004 Report" which focuses on the third national survey of young carers in Great Britain. Data collection for the survey; Information on people with care needs; Range of caring tasks young people perform; Percentage of young carers providing different tasks; Impact of caring tasks on educational experiences of carers; Percentage of young carers assessed under the Children Act.

Thu, 07/20/2017 - 15:10

The opportunity costs of informal care: does gender matter?

In this paper, we investigate the costs borne by both male and female carers in terms of their forgone formal employment opportunities. Traditionally, informal care was supplied by women but nowadays women are not only more likely to work, but also likely to be significant contributors to family finances. For women, this implies that the size of any forgone earnings cost of informal care is increasing. At the same time, population ageing is making for increasing numbers requiring care.

Thu, 07/20/2017 - 15:10