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Evaluation

Involved, inputting or informing: 'Shared' decision making in adult mental health care

Background A diagnosis of serious mental illness can impact on the whole family. Families informally provide significant amounts of care but are disproportionately at risk of carer burden when compared to those supporting people with other long-term conditions. Shared decision making (SDM) is an ethical model of health communication associated with positive health outcomes; however, there has been little research to evaluate how routinely family is invited to participate in SDM, or what this looks like in practice.

Wed, 06/06/2018 - 10:20

Working with family carers of people with dementia: 'negotiated' coping as an essential outcome

Supporting family carers is likely to remain at the forefront of community care policy in dementia care for the foreseeable future. However, despite extensive research in the area there is little evidence for the effectiveness of current interventions. Using data from an Australian study of how carers of people with dementia cope with the challenges they face, this article calls for a re-appraisal of the ways in which a successful intervention is defined and promotes an approach based on partnership in which carers themselves play a significant role in determining 'what works'.

Thu, 07/20/2017 - 15:23

User acceptance of a multi-media software application to increase preparedness for caring problems

This paper presents verification data for a multimedia software application intended to enhance carers' ability to respond to everyday difficulties and emergency situations. The program provides educational information about first aid, how to deal with everyday problems and a number of emergency situations such as bleeding, falling and choking. An evaluation plan was developed, including instruments for measuring and assessing usability.

Thu, 07/20/2017 - 15:23

Telephone support group intervention for persons with hemophilia and HIV/AIDS and family caregivers

The purpose of this pilot project was to test the feasibility of a telephone support group intervention for persons with hemophilia and HIV/AIDS and for their family caregivers. Their support needs were unique because they did not identify with predominant groups of persons with AIDS and were geographically dispersed from peers. The 12 week intervention involved separate telephone support groups for hemophiliacs and for family caregivers. The two groups, comprised of a predetermined maximum of six people, were co-led by a professional and a peer.

Thu, 07/20/2017 - 15:22

Managing carer stress: an evaluation of a stress management programme for carers of people with dementia

Examines the effect of carer stress management using the Carers' Checklist (Hodgson et al 1998) as a measure of outcome. Pre-course and post-course questionnaires were used with carers, who agreed to attend a structured stress management course. The carers who attended demonstrated a better awareness and understanding of stress and its management following the course. Positive measures of outcome were also determined by a decrease in the carers' rating in frequency of dementia-related problems, carer burden of dementia-related problems and overall carer burden.

Thu, 07/20/2017 - 15:22

A systematic review of networked technologies supporting carers of people with dementia

We conducted a systematic review of the effectiveness of networked ICT interventions in supporting carers of people with dementia. Five bibliographic databases were searched and a total of 1,456 abstracts were identified as potentially relevant. From these we identified 15 papers describing five interventions: ComputerLink, AlzOnline, Caring for Others and two studies from the REACH project (TLC and CTIS). The interventions reviewed were multifaceted with elements of networked peer support.

Thu, 07/20/2017 - 15:22

'A whole month of pleasure' - making music on the South Downs

This article describes an innovative project for people with dementia and their carers at Glyndebourne Opera House. During November and December 2008 and 2009, the Glyndebourne education department provided a series of 4 sessions for people with dementia and their carers. The Glyndebourne project was jointly funded and developed through a partnership between Glyndebourne Festival Opera and the Lewes Villages Dementia Carers Outreach Service. Between 20 and 30 people with dementia and their carers took part in the project each year.

Thu, 07/20/2017 - 15:22

'A brilliant think...just doing my own little bit'

Liveability is a NHS nurse-led service providing instructor-led exercise classes and gym sessions in Liverpool. The service collaborated with a European research project Innovate Dementia to increased access to Liveability for people living with dementia and to evaluate the benefits for those taking part in the programme. The evaluation found that involvement in the exercise programme brought many benefits for individuals with dementia and their carers. Core themes are discussed in relation to enjoyment and recreation and improved fitness and cognition.

Thu, 07/20/2017 - 15:21

START (STrAtegies for RelaTives) coping strategy for family carers of adults with dementia: qualitative study of participants’ views about the intervention

Objectives To analyse the experience of individual family carers of people with dementia who received a manual-based coping strategy programme (STrAtegies for RelaTives, START), demonstrated in a randomised-controlled trial to reduce affective symptoms.

Design A qualitative study using self-completed questionnaires exploring the experience of the START intervention. Two researchers transcribed, coded and analysed completed questionnaires thematically.

Thu, 07/20/2017 - 15:21