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British nursing index bni - exported on 8/7/2016

Do they look after their own? Informal support for South Asian carers

Policy on care in the community was founded on the premise that the care of frail elderly people with disabilities would be a joint responsibility for health and social care professionals, and family carers, supported by people within their social networks. The policy assumes that such social networks are common features of all communities in contemporary Britain, containing a reserve of people who can be called upon to provide support to carers.

Thu, 07/20/2017 - 15:16

When and how to initiate discussion about prognosis and end-of-life issues with terminally ill patients

The aim of this study was to explore by whom, how, and when discussions about prognosis and end-of-life issues should be initiated with terminally ill patients, and the context in which these issues can be optimally discussed. Focus groups and individual interviews were conducted with 19 palliative care (PC) patients, 24 carers, and 22 PC health professionals (HPs). Participants had disparate views regarding by whom and when such discussions should be initiated, although a similar range of perspectives was expressed by all participant groups.

Thu, 07/20/2017 - 15:16

Critical issues for service planners and providers of care for people with Down's syndrome and dementia

The role of service planners and providers of care is one that cannot be understated while considering the future needs of people with Down's syndrome and dementia. This discussion paper raises critical issues that need to be addressed along with suggestions as to how they may be met with.

Thu, 07/20/2017 - 15:15

Conflicting agendas between consumers and carers: the perspectives of carers and nurses

Increasingly, Australian government policy advances an expectation that consumer and carer participation will be present in all aspects of mental health service delivery. A review of the literature suggests that consumers and carers actively seek the opportunity to participate but are frequently hampered by barriers. However, government policy documents tend to discuss consumers and carers with regards to participation as though their needs and desires are essentially similar.

Thu, 07/20/2017 - 15:15

Multidisciplinary approaches to moving and handling for formal and informal carers in community palliative care

Health professionals such as nurses, physiotherapists and occupational therapists provide a wealth of support in the community to patients and their carers receiving palliative care. Moving and handling is one such support that needs careful consideration and assessment including risk, by appropriately qualified professionals. A combination of skills are required as well as knowledge of up to date equipment to assist the health professional in deciding how to formulate safe moving and handling interventions in a timely way.

Thu, 07/20/2017 - 15:15

Preparing carers to look after palliative care patients at home

Literature review of issues which are of importance to informal carers of people with terminal illness. The advantages and disadvantages of caring for a dying relative and carers' need for information and support are discussed. 4 case studies and a list of useful resources for carers are included and recommendations are made for nursing care. 

Thu, 07/20/2017 - 15:15

Understanding the experiences and needs of people with dementia and sight loss

It would surprise many people to know that sight loss may be more common in people with dementia; the effect of these two conditions on people's lives had never previously been investigated until recently. Here, Vanessa Lawrence and Joanna Murray present the findings of their ground‐breaking research carried out with Professor Sube Banerjee and Dr Dominic Ffytche of King's College, London into how sight loss and dementia affects the lives of older people and their carers.

Thu, 07/20/2017 - 15:15

A longitudinal study of home care clients and their informal carers

The objective of the longitudinal study was to monitor physical and cognitive changes in a population of 330 older people being supported at home by health services. The participants were 75 years and older and classified as having moderate-to-high needs. A total of 210 primary informal carers were recruited to determine their specific needs and how they coped as dependency levels of their care-recipients changed. Data were collected using six different tools. Two questionnaires were mailed out to participating carers.

Thu, 07/20/2017 - 15:15

Assessing palliative care needs: views of patients, informal carers and healthcare professionals

Aim.  This paper reports a study to assess the palliative care needs of the adult population served by a healthcare provider organization in Northern Ireland from the perspectives of patients, informal carers and healthcare providers.

Thu, 07/20/2017 - 15:15

Understanding abuse of women with physical disabilities: an overview of the Abuse Pathways Model

The purpose of this article is to provide an overview of an empirically based theoretical model of abuse of women with physical disabilities. The Abuse Pathways model was developed from a critical disability life history research study conducted with 37 women who had simultaneously experienced abuse and physical disability. The model begins to address the complexity of abuse of women with physical disabilities by identifying the interactive components of the phenomenon.

Thu, 07/20/2017 - 15:15

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