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Web of science - exported 12/7/2016

The family caregivers journey in end-of-life care: Recognizing and identifying with the role of carer

The process of dying in the 21(st) Century is often protracted. An aging population and increasing long-term conditions have resulted in a need for increased palliative and end-of-life care. Formal healthcare services are unable to fully provide the level of support required at the end of life. Increasingly therefore, family caregivers are being relied upon to provide often complex interactions and support to people who are dying.

Thu, 07/20/2017 - 15:11

Thai stroke patient caregivers: Who they are and what they need

Background and Purposes: Primary informal caregivers play a significant role in providing care to stroke survivors after having been discharged from the hospital. Our aims were to describe the characteristics of Thai stroke caregivers and to explore their needs while providing care to their stroke relatives. Methods: Using open-ended questions, we individually interviewed 20 caregivers of stroke survivors to identify their characteristics and their own needs. Additional field notes were made during all interviews.

Thu, 07/20/2017 - 15:11

The experience of being an informal "carer" for a person with cancer: A meta-synthesis of qualitative studies

Objective: Increasingly, family or friends are providing care to those with cancer. However, the majority of those assuming the caring role have no prior knowledge related to the provision of care. The present study aimed to explore the experiences of informal carers with respect to their role, thus determining ways that services may support transition to this role. Method: In order to obtain an in-depth view of such experience, a qualitative meta-synthesis was employed to review the findings of 17 studies.

Thu, 07/20/2017 - 15:11

A Journey of Discovery: Experiences of Carers of People with Mental Illness Seeking Diagnosis and Treatment for Their Relative

This study explores the experiences of informal carers of people with mental illness in an Australian mental health service. A qualitative descriptive approach was used with data collected via focus group interviews with a purposive sample of 19 carers. Data analysis revealed two major themes: (a) "Something is not right" and (b) "Now we have a diagnosis." The carers noticed that there was something wrong with their relative before they received a diagnosis but were often hesitant to engage Mental Health services.

Thu, 07/20/2017 - 15:11

Carers' representations of affective mental disorders in British Chinese communities

Infrequent use of and delayed presentation to professional services have increased the burden of mental illness in minority ethnic communities. Within the growing literature on informal carers, the Chinese remain relatively unstudied. This article reports a qualitative study of 14 carers to explore illness representations of affective disorders in British Chinese communities. Firstly, it places the study within a theoretical framework that permits an understanding of mental health and illness in different sociocultural belief systems.

Thu, 07/20/2017 - 15:11

The meaning of cancer: implications for family finances and consequent impact on lifestyle, activities, roles and relationships

Objective: This study explores the impact that cancer-related financial hardship/worries can have on family life.

Methods: Forty patients (19 male and 21 female) and 17 carers participated in a qualitative study, which drew on certain elements of grounded theory methods. Participants were 18 years or older and were accessed through a regional cancer centre, an acute National Health Service trust, a support group and the Macmillan Benefits Helpline. Interviews were transcribed verbatim and analysed thematically with the aid of nvivo 7 (QSR International, Cambridge, MA, USA).

Thu, 07/20/2017 - 15:11

Informal Home Care for Elderly in Belgium: A Study on the Features and Challenges of Informal Care at Local Level

In Belgium, and in other OECD countries, there is a growing awareness about the importance of informal home care for the elderly's well-being. Informal care is considered as an intrinsically valuable social phenomenon. Public authorities in Belgium have been advocating an active policy of support for informal carers.

Thu, 07/20/2017 - 15:10

New Deal for Carers or unfair deal: what is in it for informal carers of stroke survivors?

Proposals for the New Deal for Carers, launched in 2007, include improved access to information via a helpline and carer training. Using informal (unpaid, usually family) stroke carers as an example, we examine research evidence for whether these carers might benefit from the proposals. We argue that too little attention is being paid to the available research and despite some generic carer problems, carer diversity means this poorly targeted input is likely to have little impact.

Thu, 07/20/2017 - 15:10

Toward an evidence-based implementation model and checklist for personalized dementia care in the community

The aim was to develop an evidence-based model that focuses specifically on factors that enable the provision of personalized care to facilitate and promote the implementation of community-based personalized dementia care interventions. The model is based on our previous research and additional literature.

Thu, 07/20/2017 - 15:10

Short-term residential care for dementia patients: predictors for utilization and expected quality from a family caregiver's point of view

Background: Short-term residential care (SRC) has proved to be effective in reducing the burden on family caregivers of dementia patients. Nevertheless, little is known about the factors which influence its usage or the expectations of family caregivers regarding quality. In this paper we address the following questions: (i) which variables of the care situation, the caregivers and their attitudes act as predictors for the utilization of SRC facilities? (ii) What are the views of caregivers about the quality of SRC?

Thu, 07/20/2017 - 15:10

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