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Web of science - exported 12/7/2016

Disability in young adults following major trauma: 5 year follow up of survivors

Background: Injuries are a major cause of mortality and morbidity in young people. Despite this, the long-term consequences for young survivors of severe injury are relatively unexplored. Methods: Population based cohort study involving 5 year post injury structured interview of all cases of major trauma ( Injury Severity Score > 15) identified retrospectively for 12 month period ( 1988 to 1989) within former Yorkshire Health Authority area of the United Kingdom. Results: 125 individuals aged 11 24 years at time of injury were identified. Of these, 109 ( 87%) were interviewed.

Thu, 07/20/2017 - 15:10

Quality of life in a heterogeneous sample of caregivers of cancer patients: an in-depth interview study

To establish the best approach to develop a quality of life (QoL) questionnaire for cancer-patient caregivers, this study attempts to identify primary domains of QoL in terms of their impact on a purposive sample of caregivers. Seventy-seven informal adult caregivers of cancer patients (breast cancer, paediatric haematological malignancies or melanoma) with different relationships with the patients (parents, children, spouses, siblings, and friends) were recruited at three specialised French centres and extensively interviewed.

Thu, 07/20/2017 - 15:10

Everything must go? The privatization of state social work

This paper considers the transformation of state social work over the past two decades. During this period, it is argued that a steady yet radical process of privatization has ensued which has had a considerable impact upon the experiences of ‘service users’, informal carers and social work practitioners. Not only does the private sector now dominate key sectors of social care, but it has also transformed the culture of state social work practice and many of the accepted beliefs and ideals of the social work profession.

Thu, 07/20/2017 - 15:10

Study protocol for the development of a European measure of best practice for people with long term mental health problems in institutional care (DEMoBinc)

Background: This study aims to build a measure for assessing and reviewing the living conditions, care and human rights of people with longer term mental health problems in psychiatric and social care institutions. Protection of their human rights is imperative since impaired mental capacity secondary to mental illness can make them vulnerable to abuse and exploitation from others. They also constitute a major resource pressure for mental health services, social services, informal carers and society as a whole.

Thu, 07/20/2017 - 15:10

Relatives in end-of-life care - part 1: a systematic review of the literature the five last years, January 1999-February 2004

Aim. To review systematically research conducted during the past five years focusing on the relatives' situation and needs in end-of-life care. Background and aim. That relatives make a large contribution in the care of the dying is well-known. In this situation, relatives often have to solve many new practical problems in the care as well as dealing with the sorrow of both themselves and the dying person. In recent years, palliative care has been developed in many countries and many new studies have been carried out. Methods.

Thu, 07/20/2017 - 15:10

Breast cancer information and support needs for women with intellectual disabilities: a scoping study

Objective: To examine the compass and nature of relevant research and identify gaps in the current evidence in order to determine the priority of future research about breast cancer and intellectual disability (ID).

Methods: A scoping study that comprised of a consultation exercise with a wide range of key stakeholders (n = 26) from one northern city (Sheffield) within the UK.

Thu, 07/20/2017 - 15:10

Patient Centered Integrated Clinical Resource Management

The impact of funding systems on the IT systems of providers has been enormous and have prevented the implementation of designs to focused on the health issue of patients. The paradigm shift the Dutch Ministry of Health has taken in funding health care has a remarkable impact on the orientation of IT systems design. Since 2007 the next step is taken: the application of the funding concept on chronic diseases using clinical standards as the norm. The focus on prevention involves the patient as an active partner in the care plan.

Thu, 07/20/2017 - 15:10

Psychosocial interventions for carers of survivors of stroke: A systematic review of interventions based on psychological principles and theoretical frameworks

Purpose. Most stroke survivors are cared for at home by informal carers, usually their partners or children. The chronic burden of meeting these care needs can have a significant impact on the psychological well-being of the carer. The aim of this review is to analyse interventions that target psychosocial functioning in carers of stroke survivors to understand how such interventions can reduce the burden of caring. Method.

Thu, 07/20/2017 - 15:10