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Web of science - exported 12/7/2016

Evaluating the effects of mindfulness-based interventions for informal palliative caregivers: A systematic literature review

Background: There is a need to identify proactive, evidence-based interventions to support informal palliative caregivers. Mindfulness-based interventions, evidenced in the literature as providing physical and mental health benefits for diverse populations, may have application in the setting of palliative caregiving.

Aim: To describe, evaluate and synthesise the peer-reviewed literature on the effects of mindfulness-based interventions for informal palliative caregivers.

Thu, 07/20/2017 - 15:10

The experience of partners of young stroke survivors

Purpose. Stroke is a health crisis that can prompt a re-organisation of lives and impact on family caregivers. This study extends existing findings by investigating the experiences of partners of young stroke survivors (under 60 years old) two to seven years post-stroke. Method. Semi-structured interviews with seven partners were analysed using interpretative phenomenological analysis. Results. Two super-ordinate themes emerged, 'Adjustment' and 'Coping'.

Thu, 07/20/2017 - 15:10

Measuring the Effectiveness of New Approaches to Housing Support Policy for Persons with Disabilities

Housing support policy for persons with disabilities who require access to 24-hour formal or informal support is changing throughout Australia. This is consistent with international trends including: independent living in generic housing; facilitating choices about where and with whom people live; individualised home-based support; and community integration. Are these trends leading to policies that are effective in the Australian context ? This article presents a framework for analysing the effectiveness of new approaches to housing support using a rights perspective.

Thu, 07/20/2017 - 15:10

Perspectives from the frontlines: palliative care providers' expectations of Canada's compassionate care benefit programme

Recognising their valuable role as key informants, this study examines the perspectives of front-line palliative care providers (FLPCP) regarding a social benefit programme in Canada designed to support family caregivers at end-of-life, namely the Compassionate Care Benefit (CCB). The CCB’s purpose is to provide income assistance and job security to family caregivers who take temporary leave from employment to care for a dying family member.

Thu, 07/20/2017 - 15:09

Examining the role of subjective and objective burden in carer health-related quality of life: the case of colorectal cancer

Purpose: Our aim was to investigate associations between the subjective burden of care and health-related quality of life (both physical and mental) within colorectal cancer patient carers in Ireland, with supplementary analysis of carer objective factors.

Thu, 07/20/2017 - 15:09

Cancer narratives and methodological uncertainties

This article considers the methodological uncertainties arising in the early months of a research project that involves the secondary data analysis, using narrative analysis methods, of lengthy interview transcripts with cancer patients and their main informal carers. It revisits the particular social contexts, purposes and intentions involved in the creation of the interview transcripts, then considers the new methodological challenges involved.

Thu, 07/20/2017 - 15:09

The impact of stroke on the well-being of the patient's spouse: an exploratory study

Aims.  The aim of this study was to investigate the impact of stroke on the patient's spouse, paying particular attention to psychiatric morbidity and the strain of caring, and correlating these with the degree of disability of the patient. The impact of impairment of speech was also investigated.

Background.  The impact of a stroke is not limited to the person who suffers it but also to the family, with the patient's spouse being particularly vulnerable. The literature suggests that the consequences for the spouse can be physical, psychological, economic and social.

Thu, 07/20/2017 - 15:09

What do community-dwelling people with dementia need? A survey of those who are known to care and welfare services

Background: The aging society will bring an increase in the number of people with dementia living in the community. This will mean a greater demand on care and welfare services to deliver efficient and customized care, which requires a thorough understanding of subjective and objective care needs. This study aims to assess the needs of community-dwelling people with dementia as reported by themselves and by their informal carers. The study also aims to give insight into the service use and gaps between needs and the availability of services.

Thu, 07/20/2017 - 15:09

Creating 'therapeutic landscapes' for mental health carers in inpatient settings: A dynamic perspective on permeability and inclusivity

Although there has been a shift toward treatment in the home and the community, in the UK, inpatient facilities are still important in modern mental health care. ‘Informal carers’, including family members, often play an essential role, not only in providing care in the community but also in care of patients during periods of hospitalisation.

Thu, 07/20/2017 - 15:09

Estimating service demand for respite care among informal carers of people with psychological disabilities in Australia

Objective: To estimate service demand (willingness to seek or use services) for respite care among informal, primary carers of people with a psychological disability and to describe their characteristics. Methods: Analysis of data from the household component of the 2009 Survey of Disability Ageing and Carers (n=64,213 persons). Results: In Australia in 2009, 1.0% of people aged 15 years or over (177,900 persons) provided informal, primary care to a co-resident with a psychological disability.

Thu, 07/20/2017 - 15:09