I am a Research Associate in the Faculty of Wellbeing, Education and Language Studies currently supporting DAPPLE, an NIHR project exploring models of palliative and end of life care for people with learning disabilities. Previously I worked as a Research Associate for the Victoria and Stuart project, conducting a rapid scoping review of existing End of Life Care Planning resources for people with learning disabilities End Of Life Care Planning | The Victoria And Stuart Project.
I have a BSc (Hons) in Psychology from the Open University and an MSc in Research Methods in Psychology from Anglia Ruskin University. I completed my PhD with the Open University on the social construction of quality diabetes care appointments in primary care by adults with learning disabilities, their supporters and healthcare professionals. My MSc dissertation explored the social construction of responsiblity for diabetes management by people with learning disabilities and those who support their diabetes care.
As a Visiting Researcher I have supported multiple Open University projects within WELS and STEM, with a focus on conducting literature reviews and qualitative data analysis on health and social care related topics including: the role of self-advocacy groups in supporting the health and wellbeing of adults with learning disabilities during the coronavirus pandemic, the funding of self-advocacy groups for people with learning disabilities, cyber-victimisation of people with disabilities and long-term conditions, challenging reproductive injustice for women with learning disabilities and young mothers’ experiences in West Africa.
I am currently a member of the Open University's Social History of Learning Disability (SHLD) research group Social History of Learning Disability |and have supported the organisation of conferences for the SHLD and Learning Disability England. I formerly edited the Newsletter for the Open University Psychological Society and served as regional Chair running local events in Cambridge. During my PhD I served as an OUSA Appointed HREC Research Student on the University’s Human Research Ethics Committee.
My research interests include the health and wellbeing of people with learning disabilities and chronic illness. I have a strong interest in qualitative research methods.
I am working with Learning Disability England and the University of East Anglia on projects relating to the health and wellbeing of people with learning disabilities.
I was a Research Assistant on the PROMISE project, a mixed methods project which aimed to reduce the use of restraint in mental health services at Cambridgeshire and Peterborough NHS Foundation Trust.
As a member of the International Association for the Scientific Study of Intellectual & Developmental Disabilities (IASSIDD): Health Special Interest Research Group, I contributed to the development of International Consensus Guidelines: Reasonable Adjustments in the Management of Type 2 Diabetes in Adults with Intellectual & Developmental Disabilities Int-Consensus-Guidelines-Management-of-Type-2-Diabetes-Intellectual-Disabiliteis-IASSIDD-Taggart-et-al.-2021.pdf.
I have contributed to the Methods Bulletin of the European Journal of Psychology Students Lorna Rouse – JEPS Bulletin.
Menstruation and learning disability across the life course: Using a two‐part scoping exercise to co‐produce research priorities (2024-09)
Earle, Sarah; Ledger, Susan; Newton, Victoria; Rouse, Lorna and Tilley, Elizabeth
British Journal of Learning Disabilities, 52(3) (pp. 524-537)
Reflections on an Evidence Review Process to Inform the Co-Design of a Toolkit for Supporting End-of-Life Care Planning With People With Intellectual Disabilities (2024)
Tilley, Elizabeth; Rouse, Lorna; Tuffrey-Wijne, Irene and Anderson-Kittow, Rebecca
Health Expectations, 27, Article e70062
Inventorising existing approaches and resources for end of life care planning with people with intellectual disabilities: a scoping review (2023-06)
Rouse, Lorna; Tilley, Elizabeth; Anderson-Kittow, Rebecca and Tuffrey-Wijne, Irene
Palliative Medicine, 37, Article Supplement 1(1) (pp. 162-162)
PROGRESS: the PROMISE governance framework to decrease coercion in mental healthcare (2018-07-16)
Lombardo, Chiara; Van Bortel, Tine; Wagner, Adam P; Kaminskiy, Emma; Wilson, Ceri; Krishnamoorthy, Theeba; Rae, Sarah; Rouse, Lorna; Jones, Peter Brian and Kar Ray, Manaan
BMJ Open Quality, 7, Article e000332(3)
Mental health inpatients’ and staff members’ suggestions for reducing physical restraint: A qualitative study (2018-04)
Wilson, C.; Rouse, L.; Rae, S. and Kar Ray, M.
Journal of Psychiatric and Mental Health Nursing, 25(3) (pp. 188-200)
Is restraint a 'necessary evil' in mental health care? Mental health inpatients' and staff members' experience of physical restraint (2017-10)
Wilson, Ceri; Rouse, Lorna; Rae, Sarah and Kar Ray, Manaan
International Journal of Mental Health Nursing, 26(5) (pp. 500-512)
Repertoires of responsibility for diabetes management by adults with intellectual disabilities and those who support them (2016-11)
Rouse, Lorna and Finlay, W. M. L.
Sociology of Health & Illness, 38(8) (pp. 1243-1257)
The Social Construction of Quality Diabetes Care Appointments in Primary Care by Adults with Mild-to-Moderate Learning Disabilities, Their Supporters and Healthcare Professionals (2020-04-01)
Rouse, Lorna Jane
PhD thesis The Open University
Funding the Gap: A report on the funding of self-advocacy groups in 2021 (2022-05)
Rouse, Lorna; Tilley, Elizabeth; Walmsley, Jan and Picken, Shaun
The Open University
International Consensus Guidelines: Reasonable Adjustments in the Management of Type 2 Diabetes in Adults with Intellectual & Developmental Disabilities (2021)
Taggart, L.; Tripp, H.; Conder, J.; Whitehead, L.; Scott, J.; Rouse, L.; Redquest, B.; Lunsky, Y. and Truesdale, M.
International Association for the Scientific Study of Intellectual & Developmental Disabilities (IASSIDD) Health Specialist Interest Group (www.iasssidd.org)
Filling in the Gaps: The role of self-advocacy groups in supporting the health and wellbeing of people with learning disabilities throughout the pandemic (2020-11)
Rouse, Lorna; Tilley, Elizabeth; Walmsley, Jan and Picken, Shaun
The Open University, Milton Keynes, UK.