Dr Ned Redmore

This project aims to co-produce a tool aimed at enabling day services to document the views and experiences of autistic people with profound learning disabilities for use in service development and evaluation. Such tools are of pressing need, as highlighted by the National Institute for Health and Care Excellence (2018) who regard capturing the views of people who access services as being key to improving social care provision. This group rely on service provision throughout adulthood, yet there are no tools or approaches that have been developed to capture this group’s views or experiences. The tool’s concept emanates from inclusive research involving autistic people with profound learning disabilities. It is now being co-produced to a practical application through interviews and workshops with autistic people, people with learning disabilities, family members and support practitioners. Autistica’s funding will expand and conclude co-production activities and support the development of a community informed application to NIHR’s Research for Social Care call.