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'Just being selfish for my own sake . . .': balancing the views of young adults with intellectual disabilities and their carers in transition planning

In contrast to other forms of family caregiving, becoming the parent or carer of a child with an intellectual disability (ID) implies an ongoing responsibility beyond the attainment of chronological adulthood (Meyers et al., 1985; Todd and Shearn, 1996). At the same time, a discourse of self-determination pervades policy around transition to adult services in ID in England (Valuing People, 2001). In this paper we present a subset of data from a project which aimed to examine how the process of transition from child to adult services in ID is managed.

Thu, 07/20/2017 - 15:18

Bounded agency in young carers' lifecourse-stage domains and transitions

This paper presents the findings from a project investigating the circumstances, experiences, perspectives and service needs of young people caring for a family member with a disability or long-term illness. Using qualitative methods, our research explored the experiences of two cohorts of young carers – younger carers aged 7 to 17 years and young adult carers aged 18 to 25 years. The concept of ‘bounded agency’ offers an explanation for the way that younger carers' and young adult carers' decisions and aspirations can be shaped by the barriers and contexts in which they find themselves.

Thu, 07/20/2017 - 15:18

An Analysis of Responsibility, Attachment Security, and Relationship Efficacy among Young Carers

While there is a growing body of literature regarding young carers, there are a number of gaps in our knowledge about these young people. In this study we attempted to fill these gaps by asking: 1) Do young people who care for a parent feel greater or lesser attachment security and relationship efficacy than adolescents who do not care for a parent?, 2) Is there a difference between young people who care for a parent and those who care for another family member?

Thu, 07/20/2017 - 15:18

Listening to the voices of young carers using Interpretative Phenomenological Analysis and a strengths-based perspective

The 2011 census suggested that 244,000 young people in England and Wales under 19 provide unpaid care for someone with an illness or disability (Office for National Statistics, 2013). Young carers are not a homogeneous population; they represent children and young people from a variety of backgrounds with diverse experiences. Young carers are described as a 'hidden population' (H.M Government, 2010) hence the prevalence of young carers may be larger than data sources reveal.

Thu, 07/20/2017 - 15:18

Debates in the House of Commons

The article discusses issues being debated in Great Britain's House of Commons in July 2010. Health Minister Paul Burstow observes that young carers of parents or siblings needed an integrated support programme from schools, social services and community groups. Education Minister Michael Gove stated that the number of teachers under the Teach First Programme will be doubled to 1,140 a year. Chris Leslie of Lab/Co-op, Nottingham East, asked that funding for mental health services for deprived children in Nottingham be maintained.

Thu, 07/20/2017 - 15:18

Dads care too! Participation in paid employment and experiences of workplace flexibility for Australian fathers caring for children and young adults with disabilities

This study uses Australian survey data to explore whether caring for children and young people with disabilities affects paid employment participation of fathers who identify as the secondary caregiver. More fathers in the study were in full-time employment than those in the general Australian population, but they worked fewer hours, often in jobs they did not enjoy or roles with less responsibility. Over one third of fathers reported that caring had impacted on their job opportunities or career progression, particularly those whose children had more severe disabilities.

Thu, 07/20/2017 - 15:18

Hidden Child Workers: Young Carers in Zimbabwe

Drawing on an interview-based case study of young people caring for dependent adult members of their households in Harare, this paper connects the experiences of young carers in Zimbabwe to global forces—namely the HIV/AIDS pandemic and economic liberalisation. It is argued, firstly, that care-giving by young people is a largely hidden and unappreciated aspect of national economies which is growing as an outcome of conservative macroeconomic policies and the HIV/AIDS explosion. Secondly, that young people have a right to recognition of their work as work.

Thu, 07/20/2017 - 15:18

Carers

The article discusses the legislative statement issued by Deputy Minister for Social Services, Gwenda Thomas on the Carers Legislative Competence Order in the Welsh Assembly on December 9, 2008. Thomas said there were still key areas that were not being consistently addressed across Wales including young carers who wants recognition and support where possible. But Thomas clarified that young carers should not have the responsibility that was inappropriate to their age or capacity. Thomas also proposed to include all ages in the definition of carers.

Thu, 07/20/2017 - 15:18

Transitions into informal caregiving and out of paid employment of women in their 50s

Data from the Australian Longitudinal Study on Women's Health were used to study the order of events leading to informal caregiving and changes in labour force participation in mid-aged women, taking into account health and socioeconomic status. This analysis included 9857 women who responded to the third (2001) and fourth (2004) surveys and provided data for the caring and employment variables used. Caring was defined as providing care for an ill, frail or disabled person at least 7 h/wk. Between 2001 and 2004, the proportion of women caring increased from 12 to 14%.

Thu, 07/20/2017 - 15:18

Family fortunes.

The article informs that the community health mental health team where the author worked as a community psychiatric nurse (CPN) a few years ago had a referral from a GP for a woman in her thirties with anxiety and depression. When he went to assess this patient, he discovered that she was the daughter of a previous patient of mine--her mother having had chronic schizophrenia. Nina, the new patient, had been offered a wide range of treatments in the past but had never spoken about growing up with a mother who had schizophrenia.

Thu, 07/20/2017 - 15:17

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