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A descriptive profile of caregivers of older adults with MS and the assistance they provide

Purpose. To describe and compare spousal and non-spousal caregivers of older adults with multiple sclerosis (MS), the nature and extent of assistance they provide, and the challenges they experience in the course of their caregiving role.

Thu, 07/20/2017 - 15:22

Smarter spending for better care: ten ideas to make better use of social care funding for older people and carers

With the budgetary pressures facing local authorities in England, it is important to identify how better value for money could be achieved from current spending on social care. The drive for efficiencies should not be at the detriment of older people with care and support needs and their families and carers. This document provides 10 ideas to make better use of current social care funding while improving quality of care and experiences for older people and their carers.

Thu, 07/20/2017 - 15:22

Life after caring: The post-caring experiences of former carers

This qualitative study was informed by grounded theory and data were gathered primarily through semi-structured in-depth interviews with thirty-seven theoretically sampled former carers. They were all white British, lived in the East Midlands and were predominately over sixty (68 per cent) and female (70 per cent). With the exception of one, all had cared for a close relative, 65 per cent having cared for a partner/spouse. Most of their dependants were older adults and each case the cessation of caring had coincided with the death of the dependant.

Thu, 07/20/2017 - 15:22

Quality of life measures for carers for people with dementia: measurement issues, gaps in research and promising paths

Background: providing support to a family member with dementia often comes at a cost to the quality of life (QoL) of the carer (caregiver), giving rise to current and future unmet needs for health and social care and support themselves. These have important implications for costeffective health and social care support services and pathways.

Thu, 07/20/2017 - 15:22

The influence of social support on caregiver coping

Investigations into the act of proving care to a dementing family member typically approach the phenomenon from a stress/burden paradigm. Many studies have sought to highlight the relationship between of a range of dementia care factors (such as illness duration, patient symptoms/characteristics, service provision, etc.) and the experience of caregiver stress.

Thu, 07/20/2017 - 15:22

Facts about Carers

Facts about carers 2015 is a Carers UK digest and analysis of all the major research and statistics about carers in the UK.

This briefing covers:

  • Who are carers?
  • How many people are carers?
  • Number of hours of care provided
  • Valuing carers
  • Carer demographics
  • What kind of care do carers provide?
  • Who do they care for?
  • The impact of caring
Thu, 07/20/2017 - 15:22

The demographic characteristics and economic activity patterns of carers over 50: evidence from the English Longitudinal Study of Ageing

Studies on informal care provision have often focused on the provision of care for persons with a long term physical or mental ill-health or disability, or problems related to old age. However, the provision of care and support more broadly, for example in the form of childcare for grandchildren, can also impact on various aspects of a carer's life, such as their employment (if under the state retirement age), lifetime earnings and, by extension, pension income in later life.

Thu, 07/20/2017 - 15:22

Transitions to informal care in Great Britain during the 1990s

Objectives: To estimate annual changes and trends in the population of informal carers and to investigate transitions to caregiving by age, gender, locus of care, and level of involvement.

Design: Longitudinal analysis of data from the British household panel survey, 1991 to 1998, an annual prospective survey of a nationally representative sample of more than 5000 private households in England, Scotland, and Wales.

Thu, 07/20/2017 - 15:22

Children caring for parents with severe and enduring mental illness

Findings of a two year study by the Young Carers Research Group (in partnership with Rethink, formerly National Schizophrenia Fellowship) which looks at the experiences and needs of children who care for parents with mental illness, their caring and filial relationships and the nature of professional interventions in these families.

Thu, 07/20/2017 - 15:22

A structured training programme for caregivers of inpatients after stroke (TRACS) : a cluster randomised controlled trial and cost-effectiveness analysis

Background: Most patients who have had a stroke are dependent on informal caregivers for activities of daily living. The TRACS trial investigated a training programme for caregivers (the London Stroke Carers Training Course, LSCTC) on physical and psychological outcomes, including cost-effectiveness, for patients and caregivers after a disabling stroke.

Thu, 07/20/2017 - 15:22

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