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Activities of daily living

A step-by-step translation of evidence into a psychosocial intervention for everyday activities in dementia: a focus group study

Objective: In order to increase the efficacy of psychosocial interventions in dementia, a step-by-step process translating evidence and public engagement should be adhered to. This paper describes such a process by involving a two-stage focus group with people with dementia (PwD), informal carers, and staff.; Methods: Based on previous evidence, general aspects of effective interventions were drawn out. These were tested in the first stage of focus groups, one with informal carers and PwD and one with staff.

Thu, 01/31/2019 - 12:40

Good and Bad Days: Fluctuations in the Burden of Informal Dementia Caregivers, an Experience Sampling Study

Background: Informal dementia caregivers (IDCs) are often confronted with important fluctuations in care-related burden, commonly described as "good and bad days." These fluctuations are overlooked by traditional questionnaires focusing on the average experience. The experience sampling method (ESM) is based on the repeated collection of data in everyday life, thereby allowing the description of day-to-day fluctuations in IDC burden, and the identification of their correlates.

Tue, 01/22/2019 - 11:05

Cognitive impairment in Parkinson's disease: impact on quality of life of carers

Background: The quality of life (QoL) of informal caregivers of people with Parkinson's disease (PD) (PwP) can be affected by the caring role. Because of cognitive symptoms and diminished activities of daily living, in addition to the management of motor symptoms, carers of PwP and cognitive impairment may experience increased levels of burden and poorer QoL compared with carers of PwP without cognitive impairment. This study aimed to investigate the impact of cognitive impairment in PD upon QoL of carers.

Thu, 01/03/2019 - 14:20

Back to Work? Not Everyone. Examining the Longitudinal Relationships Between Informal Caregiving and Paid Work After Formal Retirement

Objectives: Research on unretirement (retirees who re-enter the workforce) is burgeoning. However, no longitudinal study has examined how informal care relates to unretirement. Utilizing role theory, this study aims to explore the heterogeneity of informal care responsibilities in retirement and to examine how informal care informs re-entering the workforce in later life.; Method: Data were drawn from the Health and Retirement Study of fully retired individuals aged 62 years and older in 1998 (n = 8,334) and followed to 2008.

Wed, 01/02/2019 - 12:05

Does it Matter if We Disagree? The Impact of Incongruent Care Preferences on Persons with Dementia and Their Care Partners

Purpose: To gain a better understanding of how actual and perceived incongruence of care preferences affects the psychosocial well-being of persons with dementia and their family caregiver. Design and Methods: In-depth interviews were conducted with 128 dyads each consisting of a person with dementia and a family caregiver.

Tue, 11/20/2018 - 12:28

Intergenerational transfers and informal care for disabled elderly persons in China: evidence from CHARLS

Aiming at 'ageing healthier and ageing better', a certain amount of highquality informal care should be available for elderly persons with physical disability as formal care is barely accessible in China. The demographic transition and family structural changes have dramatically weakened traditional norms of filial piety and the structure of intergenerational transfers.

Wed, 10/24/2018 - 11:32

The relationship between family functioning and caregiving appraisal of dementia family caregivers: caregiving self-efficacy as a mediator

Objectives: The aim of this study was to explore caregiving self-efficacy as a mediator for the association between family functioning and caregiving appraisal of dementia family caregivers in Taiwan. Method: This study adopted a cross-sectional correlational design. Purposive sampling was used to recruit 115 dyads of dementia patients and family caregivers from the outpatient neurological clinics of two hospitals in northern Taiwan.

Wed, 10/24/2018 - 11:25

Effect of nursing care given at home on the quality of life of patients with stomach cancer and their family caregivers’ nursing care

In Turkey, the high incidences of stomach and oesophageal cancers in East and high incidence of stomach cancer in Northeast regions are remarkable. This study was conducted to identify homecare needs of patients with stomach cancer and their caregivers and the effect of family supportive nursing care on the quality of life of patients and families. The patient and his/her caregiver were assessed with respect to their daily life activities and NANDA was used for the identified nursing diagnoses, NIC for the appropriate interventions and NOC for assessment of the results.

Thu, 08/30/2018 - 12:49

Family Caregiver Factors Associated with Unmet Needs for Care of Older Adults

Objectives: To examine caregiver factors associated with unmet needs for care of older adults.; Design: Population-based surveys of caregivers and older adult care recipients in the United States in 2011.; Setting: 2011 National Health and Aging Trends Study and National Study of Caregiving.; Participants: Family caregivers (n = 1,996) of community-dwelling older adults with disabilities (n = 1,366).; Measurements: Disabled care recipient reports of unmet needs for care in the past month with activities of

Thu, 08/30/2018 - 11:39

Expressive social support buffers the impact of care-related work interruptions on caregivers’ depressive symptoms

Objective: To assess if expressive and instrumental social support from family and friends moderate the association of care-related work interruptions (e.g. leaving work for the older adult's doctor appointment) with depressive symptoms among working family caregivers of older adults. Methods: Data were from the Singapore Survey on Informal Caregiving (SSIC).

Fri, 08/24/2018 - 12:21