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Adaptation

Spiritual and religious coping and depression among family caregivers of pediatric cancer patients in Latin America

Objective: Several studies have shown that spiritual/religious beliefs are associated with mental health and quality of life. However, so far, no study assessed the relationship between spiritual/religious coping (SRC) and depressive symptoms in family caregivers (FCs) of pediatric cancer patients, particularly in Latin America. This study aimed to investigate whether Positive and Negative SRC strategies are associated with depressive symptoms in FCs of pediatric cancer patients in Brazil. 

Tue, 12/20/2022 - 09:44

Qualitative analysis of perceived impacts on childhood food allergy on caregiver mental health and lifestyle

Background: Approximately 8% of children have food allergy. Yet, little is known about how parents cope with the burden of this disease.; Objective: This study aimed to describe the perceptions of food allergy-related mental health issues of parents of children with food allergy. Methods: Parents of children with pediatric allergist-diagnosed food allergy were recruited through allergy clinics and education centers in a large Canadian city.

Wed, 12/14/2022 - 12:31

Care demands experienced by family caregivers of children with Primary Immunodeficiency

Objective: to understand the experiences of family caregivers of children with Primary Immunodeficiency in view of care demands.

Methods: a qualitative research. Data collection was subsidized by an open interview with five family caregivers, and the data were analyzed using the Bardin Content Analysis technique, thematic modality. The Callista Roy's Adaptation Model of Nursing was used to interpret the data.

Tue, 12/13/2022 - 16:44

Care demands experienced by family caregivers of children with Primary Immunodeficiency

Objective: to understand the experiences of family caregivers of children with Primary Immunodeficiency in view of care demands.

Methods: a qualitative research. Data collection was subsidized by an open interview with five family caregivers, and the data were analyzed using the Bardin Content Analysis technique, thematic modality. The Callista Roy's Adaptation Model of Nursing was used to interpret the data.

Tue, 12/13/2022 - 16:43

Caregiver Experience in Pediatric Dialysis

Background and Objectives: Pediatric dialysis is thought to be burdensome on caregivers given their need to assume dual responsibilities of parental and medical management of their child's chronic illness. In this study, we seek to describe the experience of parental caregivers of children receiving chronic dialysis for end-stage kidney disease.

Tue, 12/13/2022 - 15:54

Medical care experiences of children with autism and their parents: A scoping review

Children with autism spectrum disorder (ASD) and their families may benefit from the provision of additional supports in health care settings, particularly when preparing for and attending medical appointments. This review examined literature that describes experiences in medical care settings from the perspective of patients under age 18 with ASD and their caregivers. A scoping review was conducted to examine the experiences of children with ASD and their families in medical care settings. Twenty-nine studies meeting inclusion criteria were identified and reviewed.

Tue, 12/13/2022 - 14:04

Peer support interventions for parents and carers of children with complex needs

Background: Parents and family carers of children with complex needs experience a high level of pressure to meet children's needs while maintaining family functioning and, as a consequence, often experience reduced well-being and elevated psychological distress. Peer support interventions are intended to improve parent and carer well-being by enhancing the social support available to them. Support may be delivered via peer mentoring or through support groups (peer or facilitator led).

Wed, 08/10/2022 - 14:33

The Road to Family Resiliency: A Case Report of a Family's Experiences Following Adolescent Stroke

Purpose: This study generated an understanding of familial resiliency following an adolescent's stroke and what resiliency-related outcomes were important to this family. Design and Methods: A qualitative case study design was used to collect data during an in-person interview. The interview was transcribed verbatim and analyzed using thematic analysis.

Thu, 06/09/2022 - 19:35

Understanding Resilience Factors Among Caregivers of People with Alzheimer's Disease in Spain

Introduction: Alzheimer's disease (AD) caregivers resilience involves the interaction between different risk and protective factors. Context of care, objective stressors, perceived stressors caregiver assessment, mediators factors and consequences of care were associated with resilience. We have developed a more integrated and operational conceptual model of resilience and care than previous models in our sociocultural environment.

Tue, 04/13/2021 - 13:21

Utilization and costs of formal and informal care, home adaptations, and physiotherapy among older patients with hip fracture

Aims: This feasibility study investigates the utilization and cost of health resources related to formal and informal care, home adaptations, and physiotherapy among patients aged 60 years and above after hip fracture from a multicentre cohort study (World Hip Trauma evaluation (WHiTe)) in the UK.

Tue, 08/04/2020 - 12:13