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Improving access to social care for adults with autism

This online guide looks at how social care services can improve access to adults with autism. It is based on research that explores the barriers to services experienced by people with autism. It covers people with autism, whether or not they also have a learning disability. The main sections of the guide cover: awareness raising; acceptability and accessibility; joint working; transitions; early intervention and prevention; personalising services; and carers. The guide suggests ways services can improve, identifying how best to meet the goals of the government's autism strategy.

Thu, 07/20/2017 - 15:19

Working with families of adults with anorexia nervosa

The aim of this paper is to describe working with the carers (families) of adults with anorexia nervosa (AN), which is different from working with families of younger adolescents. The main difference is in the area of rights and responsibilities of both parties. Moreover, as AN in adults is often a chronic condition, the treatment goal may not focus on recovery, but instead on improvement in quality of life. Thus the spectrum of nature and degree of parental involvement in the treatment of adults with AN is much broader than in children and adolescents.

Thu, 07/20/2017 - 15:19

A Kaleidoscope of Hope: Exploring Experiences of Hope Among Service Users and Informal Carers in Health Care Contexts

Background: There is a large and diverse literature on the concept of hope in health care.

Thu, 07/20/2017 - 15:18

Autism spectrum disorder in adults: diagnosis and management

Clinical guideline which provides best practice advice on the care of adults with autism. The guidance covers the following key areas: general principles of care; identification and assessment; and interventions for autism, challenging behaviour, coexisting mental disorders. Assessment and interventions for families, partners and carers and organisation and delivery of care are also covered.

Thu, 07/20/2017 - 15:18

Older carers of adults with a learning disability confront the future: Issues and preferences in planning

The Valuing People White Paper (Department of Health, 2001) requires services to secure a plan for all service-users with learning disabilities living with older carers and promises them and their families more choice and control over how and where they live. This paper examines the views of the older carers (aged over seventy) of sixty-two adults with a learning disability about planning for the future. Fifty-six took part in interviews in their own homes and six completed a questionnaire.

Thu, 07/20/2017 - 15:17

Supportive practice with carers of people with substance misuse problems

While there is increased recognition of the role of family carers in supporting adults with social care needs, some groups of carers are overlooked or hidden from professional view. Carers of people with substance misuse problems may be among this group since they are at risk of feeling guilty and stigmatised; targeting and eligibility criteria may concentrate professionals’ activities on people with high levels of need for practical support and there may be complex family dynamics where the role of carer does not fit traditional models.

Thu, 07/20/2017 - 15:17

Caregiving burden, stress, and health effects among family caregivers of adult cancer patients

Unlike professional caregivers such as physicians and nurses, informal caregivers, typically family members or friends, provide care to individuals with a variety of conditions including advanced age, dementia, and cancer. This experience is commonly perceived as a chronic stressor, and caregivers often experience negative psychological, behavioural, and physiological effects on their daily lives and health.

Thu, 07/20/2017 - 15:16

Caring, Employment, and Quality of Life: Comparison of Employed and Nonemployed Mothers of Adults with Intellectual Disability

The effects of caregiving on mothers of adults with intellectual disability was examined by determining whether there are differences in quality of life and related factors between mothers with different employment status. Study participants were 302 working-age mothers who had adult children with intellectual disability based on the 2008 census survey on intellectual disability carried out in Hsinchu, City, Taiwan.

Thu, 07/20/2017 - 15:16

Symptoms of dementia among adults with Down's syndrome: a qualitative study

Background  Dementia is common among adults with Down's syndrome (DS); yet the diagnosis of dementia, particularly in its early stage, can be difficult in this population. One possible reason for this may be the different clinical manifestation of dementia among people with intellectual disabilities.

Aims  The aim of this study was to map out the carers' perspective of symptoms of dementia among adults with DS in order to inform the development of an informant-rated screening questionnaire.

Thu, 07/20/2017 - 15:16

Nursing support for family members of critically ill adults

Researchers have identified the needs of family members of critically ill adults, explored their experiences, and investigated interventions. To address a gap in the theoretical knowledge about how nurses help these individual, the authors developed a grounded theory of nursing support from the perspective of family members. Results indicated that family members were initiated into a cycle of Work to meet perceived responsibilities to Get Through the experience.

Thu, 07/20/2017 - 15:15