Analysis

Objectives: Gold-standard overnight polysomnography does not reliably capture highly variable sleep patterns across the 24-hour day that are common with dementia and often problematic for carers. We evaluated the reliability of automatically scored actigraphy data as an alternative. Methods: Actigraphy recordings were analysed from 15 community-dwelling people with dementia (135 days total) and 14 of their family carers (124 days total). Manual scoring used participant sleep diaries to identify sleep periods.

Aims.  This paper reports the findings of a national study of the variations in the provision and correlates of respite breaks to families.

Background.  Internationally, respite breaks are a major support service to family carers, demand for which often exceeds supply for persons with an intellectual disability. Hence, the length of breaks available to families has to be rationed. Nurses are often involved in such decisions.

The paper examines trends in the probability of providing intense care for older parents over the fifteen years between 1985 and 2000, and asks what would happen to the numbers of people providing care to older parents if these trends were to continue in the coming decades. Because the present study is based on an analysis of past trends in provision of informal care, it allows for some key assumptions underlying the projections of informal care in future years to be examined empirically.