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Spirituality to build resilience in primary caregiver parents of children with autism spectrum disorders: a cross-country experiment

Objectives: To examine the effect of spirituality and spiritual training on resilience in primary caregiver parents of children with autism spectrum disorders (ASD).

Mon, 01/16/2023 - 09:48

Leveraging Academic-Community Partnerships to Engage Families of Children with Autism Spectrum Disorder in Research

It is important to engage children with ASD and the families that support them in research. However, it is often challenging for researchers to engage this population in time- and/or labor-intensive research due to the many barriers caregivers of children with ASD face. From a researcher's perspective, this challenge ultimately inhibits research designs and compromises the learning and understanding needed to identify meaningful research questions, solve relevant problems, and implement solutions into practice.

Tue, 12/20/2022 - 12:21

Quality of Life Changes during the COVID-19 Pandemic for Caregivers of Children with ADHD and/or ASD

Background: The COVID-19 pandemic has presented many challenges to caregivers of children. Families with children with attention-deficit/hyperactivity disorder (ADHD) and/or autism spectrum disorder (ASD) are an understudied but potentially vulnerable population to changes during the outbreak. As such, the aim of this study was to contrast quality of life for caregivers of children with ADHD and/or ASD, before and during the pandemic, compared to caregivers of neurotypical (NT) children.

Thu, 06/16/2022 - 19:54

The Impact of a Brief Home-Based Intervention on Families with a Child with Autism Spectrum Disorder

Background: A brief intervention is described and evaluated that aimed to build and strengthen relationships for families of children diagnosed with ASD aged 12 and under. Methods: A particular focus was on socially disadvantaged parents. Parents were offered around five home visits which took place on weekdays during working hours; each lasting around 90 min. They were given individualised practical tools and support to manage their children's behaviours alongside providing a listening ear to parents' concerns.

Sun, 06/05/2022 - 14:11

Coaching While Waiting for Autism Spectrum Disorder Assessment: Protocol of a Pilot Feasibility Study for a Randomized Controlled Trial on Occupational Performance Coaching and Service Navigation Support

Background: In Australia, the average time between a first concern of autism spectrum disorder (ASD) and diagnosis is over 2 years. After referral for assessment, families often wait 6-12 months before their appointment. This can be a time of uncertainty and stress for families. For some families, other forms of assistance are not accessible and thus timely intervention opportunities are missed. There is little evidence about how to provide the best support for children or caregivers while on assessment waiting lists.

Mon, 01/31/2022 - 14:51