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Bereavement

'Just be there': hospice caregivers' anticipatory mourning experience

Anticipatory mourning is a phenomenon that has received limited attention. This study is a retrospective, qualitative study of caregivers' perception of this process. Twenty-two participants who had received services from Hospice were interviewed, and themes were identified that elucidate the essence of this phenomenon. Participants reveal what was helpful for them, thus providing insight into potential interventions to support care at the end of life.

Thu, 07/20/2017 - 15:24

Former palliative caregivers who identify that additional spiritual support would have been helpful in a population survey

Background : Palliative care encompasses physical, psychosocial and spiritual care for patients and caregivers. No population data are available on bereaved people who subsequently report that additional spiritual support would have been helpful.

Thu, 07/20/2017 - 15:23

The experience of carers in supporting people with intellectual disabilities through the process of bereavement: an interpretative phenomenological analysis

Background: This study explored the personal experiences of family carers and residential care staff in supporting adults with intellectual disabilities through the process of bereavement.

Method: A semi-structured interview was used to interview 11 carers on their experience of supporting adults with intellectual disabilities through the process of bereavement. The transcripts were analysed using interpretative phenomenological analysis (IPA).

Thu, 07/20/2017 - 15:23

Facilitating change and adaptation : The experiences of current and bereaved carers of patients with severe chronic obstructive pulmonary disease

Background: Patients with severe chronic obstructive pulmonary disease (COPD) experience substantial symptom burden, psychological and social morbidity. The experience of this illness has an impact beyond the patient.

Objective: This study seeks to understand the experiences and needs of family carers of people with severe COPD.

Thu, 07/20/2017 - 15:23

Long-term effects of bereavement and caregiver intervention on dementia caregiver depressive symptoms

Purpose: The purpose of this study was to examine the joint effects of bereavement and caregiver intervention on caregiver depressive symptoms. 

Thu, 07/20/2017 - 15:21

End of life care: why supporting family carers is vital

This film looks at the family support service for the families and carers of people who are at the end of their lives at Leicestershire and Rutland Hospice. Social workers work with other staff members to identify families who are in need of support.

Thu, 07/20/2017 - 15:21

Family lifeline

Hospice nurses are finding new ways to care for bereaved people, reports Jennifer Trueland

Bereavement care is a vital but under-funded part of palliative care services, and there is growing evidence that people who have lost a loved one are at increased risk of serious illness. The Hospice of St Francis in Berkhamsted is providing innovative care for families of patients before and after death. ‘Life-changing’ initiatives include cookery classes and pony rides.

Thu, 07/20/2017 - 15:21

End-of-life care considerations for gay, lesbian, bisexual, and transgender individuals

Negative social attitudes, discrimination, and homophobia affect gay, lesbian, bisexual, and transgender (GLBT) individuals during their lifetimes. These experiences can affect how these individuals access health services and interact with health professionals, resulting in adverse outcomes compared with their heterosexual counterparts. End-of-life experiences can also be shaped by these factors.

Thu, 07/20/2017 - 15:19

Partners in care: sharing

INTRODUCTORY NOTE

My wife, Pauline, died from Alzheimer’s disease at the age of 59. She was 51 when diagnosed after several years of problems. I cared for her at home. For the first 3 years, I maintained my employment, albeit on an increasingly part-time basis, but resigned from work and cared for her full-time for 5 years when her needs demanded round-the-clock attention. She remained in her own home to within 5 weeks of her death, when fracturing my leg put paid to my direct caring role.

Thu, 07/20/2017 - 15:18

Bereaved informal cancer carers making sense of their palliative care experiences at home

This qualitative study explored the positive meanings constructed and ascribed to the experience of providing palliative care at home by bereaved informal cancer carers, a group of individuals who are in a position to make sense of their caring experiences as a coherent whole. Twenty-two bereaved cancer carers, living in New South Wales (NSW), Australia, were interviewed as part of a larger mixed-method study examining the experience of informal cancer care. Participants were recruited through cancer support groups and cancer clinics, and through the Cancer Council NSW.

Thu, 07/20/2017 - 15:18