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Chronic disease in children: Family experience in diagnostic reception

Objective: to know how the family experiences receiving the diagnosis of chronic disease of the child. Method: this is a descriptive and exploratory study, with a qualitative approach, with 15 family caregivers of children with chronic diseases. The technique used for the production of data was the semistructured interview, using a tape recorder. The responses were transcribed and analyzed according to the Thematic Analysis.

Thu, 01/19/2023 - 17:46

Social Networking Family of Caregivers during Hospitalization of Children

Objective: To identify and analyze the significant networks of family, social and hospital support described by the family caregivers of hospitalized children 5-12 years during the hospital stay.

Method: Descriptive study, exploratory and qualitative study conducted with 20 caregivers of children hospitalized in a hospital in a city in southern Brazil, through semi-structured interviews and significant social networks maps, tailored to the hospital setting.

Tue, 01/17/2023 - 10:02

Mothers as facilitators for a parent group intervention for children with Congenital Zika Syndrome: Qualitative findings from a feasibility study in Brazil

Background: The Zika virus outbreak in Brazil (2015-2016) affected thousands of children who were born with Congenital Zika Syndrome (CZS). Families play an important role in their care of children with complex needs, yet their knowledge, experience and skills are rarely harnessed in existing interventions to best support these families.; Objective: This study explores the use of mothers as facilitators for a community-based group intervention for children with CZS and their caregivers in Brazil.

Thu, 01/05/2023 - 15:34

Parental Stress in Primary Caregivers of Children with Evidence of Congenital Zika Virus Infection in Northeastern Brazil

Background: Despite the well-known role of parents as caregivers, few studies have addressed their health outcomes related to the Zika virus epidemic. Methods: A cross-sectional study was carried out with 146 primary caregivers of children 15–26 months of age, with laboratory and/or clinical evidence of Zika infection between August and October 2017 in three Brazilian municipalities: João Pessoa and Campina Grande in the state of Paraíba and Fortaleza in the state of Ceará.

Fri, 06/10/2022 - 11:33

Caregiving for the Elderly Person: Discourses Embedded in the Brazilian Practical Guide for the Caregiver

It is estimated that in 2025, Brazil will have the sixth largest elderly population in the world. Beyond the economic consequences of this projection, this changing demographic portends significant changes in the social realm. The aim of this study was to review and consider a range of government documents, developed during the past thirty years and directed toward elderly Brazilian citizens, to explore the ways that caregivers of older persons are positioned in daily care practices through the discourses such documents deploy.

Thu, 03/07/2019 - 10:56

Standardization of the Maristán Scale of Informal Care in people with schizophrenia and other psychoses

OBJECTIVE: No instrument has been developed and validated across cultures to measure the degree of support provided by informal carers to people with schizophrenia. We aimed to develop such a measure.

Thu, 07/20/2017 - 15:22

Existential needs of people with psychotic disorders in Porto Alegre, Brazil

Background Needs for care in service users with schizophrenia are often defined by professionals and focus on basic needs for health and social care rather than broader existential issues.

Aims To examine the perceptions of users and formal and informal carers of the needs of people with non-affective psychosis.

Method A qualitative study was conducted involving focus groups of service users and informal and formal carers in a major Brazilian city.

Thu, 07/20/2017 - 15:10