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The utilization of formal and informal home care by older patients with cancer: a Belgian cohort study with two control groups

Background The purpose of this paper is to analyse the utilization of formal and informal home care among older patients with cancer (OCP) and to compare this with middle-aged patients with cancer (MCP) and older patients without cancer (ONC). Additionally, we examined predictors of transitions towards formal care one year after a cancer diagnosis. Methods OCP and MCP had to be recruited within three months after a cancer diagnosis and have an estimated life expectancy over six months.

Thu, 03/07/2019 - 11:02

The construction of help during radiotherapy: Redefining informal care

Objectives: This study will explore how help is constructed during and following radiotherapy for patients with cancer.

Methods: Grounded theory methods were used in the study to explore the way in which family members and friends constructed a role for themselves in relation to patients receiving radiotherapy. A total of 22 helpers were interviewed. Patients were being treated for a range of cancers including breast, prostate, colorectal, and head and neck.

Thu, 03/07/2019 - 10:51

Carer Experience Supporting Someone With Dementia and Cancer: A Narrative Approach

In this article, we examine the challenges of informal carers supporting someone with dementia and cancer within the United Kingdom. Interviews were conducted with seven informal carers using a narrative approach to examine the construction of their experiences. Our findings demonstrate how informal carers navigate a path through complex cancer treatments and support their relative. A cancer diagnosis often requires multiple treatment visits to an oncology center, and this can be challenging for carers.

Wed, 02/20/2019 - 14:39

Informal Caregiving Networks for Hospice Patients With Cancer and Their Impact on Outcomes: A Brief Report

This prospective study investigates informal care networks and their impact on hospice outcomes. Primary caregivers (N = 47) were the main source of data from 2 time points: within a week of enrollment in hospice and bereavement. Data were also collected from 42 secondary caregivers. Intraclass correlation coefficients (ICCs) determined correspondence between primary and secondary caregivers regarding informal care network size. Correlations were used to test associations between variables. Nonparametric paired sample tests were used to analyze change in anger and guilt.

Tue, 02/19/2019 - 20:41

A qualitative exploration of the experiences, needs, and roles of caregivers during and after cancer treatment: "That's what I say. I'm a relative survivor"

Purpose: The transition out of acute cancer treatment has been identified as a time of stress and uncertainty for cancer survivors, but little is known about how caregivers fare during this period. In this paper, we discuss caregiving work up to and including transition from initial care and the needs of caregivers during transition and beyond.; Methods: We held four focus groups with breast, prostate, and colorectal cancer survivors who had completed treatment with intent to cure and two with caregivers for the same population.

Mon, 02/18/2019 - 21:47

Interrelationships Between Health Behaviors and Coping Strategies Among Informal Caregivers of Cancer Survivors

Background: Recent research among cancer survivors suggests that health behaviors and coping are intertwined, with important implications for positive behavior change and health.

Tue, 02/05/2019 - 12:43

Priorities for caregiver research in cancer care: an international Delphi survey of caregivers, clinicians, managers, and researchers

Purpose: With an increased investment in psychosocial caregiving research, it becomes critical to establish the need for data of key stakeholders and future strategic directions. The purpose of this international Delphi study was to engage caregivers, clinicians, researchers, and managers to identify priority topics for caregiver research in cancer care.; Methods: A three-round, online Delphi survey took place. In round 1, stakeholders generated caregiver research topics by answering an open-ended question.

Tue, 02/05/2019 - 12:03

Predictors of depression and anxiety among caregivers of hospitalised advanced cancer patients

Introduction: Cancer is a chronic disease that requires long-term treatment and care. Caregivers of cancer patients are at greater risk of developing depression than the general population. The effect of caregivers' cognitive flexibility on depression and anxiety has not been studied. We aimed to investigate the social characteristics, burden level and cognitive flexibility of caregivers of advanced cancer patients, and determine the relationship between these factors and depression and anxiety.

Tue, 02/05/2019 - 10:15

Caring for the person with cancer: Information and support needs and the role of technology

Objective: Informal carers experience a variety of information and support needs when providing care to someone with cancer.

Fri, 02/01/2019 - 12:13

Caring for patients with brain tumors compared to patients with non-brain tumors: Experiences and needs of informal caregivers in home care settings

Background/objective: Informal caregivers of patients with advanced cancer experience a challenging time, especially while caring for the patient at home. The aim of this study is to compare experiences, perceived burdens, and needs during home care of informal caregivers of brain tumor patients and informal caregivers of non-brain tumor patients.; Methods: 28 informal caregivers (17 brain tumor group, 11 non-brain tumor group) participated in this study. Semi-structured interviews were conducted to gather information retrospectively.

Fri, 02/01/2019 - 11:44

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