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caregiver distress

“I can’t live like that”: the experience of caregiver stress of caring for a relative with substance use disorder

Background: The impact of addiction extends beyond the individual using a substance. Caring for an individual with addiction creates persistent stressful circumstances that cause worry, anger, depression, shame, guilt, anxiety, and behavioral problems within the family unit. The aim of the study: The paper aims to explore the experiences of caring for a relative with a substance use disorder (SUD) and self-care strategies caregivers employ. Methods: The study adopted an exploratory qualitative design.

Fri, 06/03/2022 - 16:53

Caregiver distress and quality of life in primary caregivers of oncology patients in active treatment and follow‐up

Objective: As the number of informal caregivers and their caregiving responsibilities increase, this study aims at evaluating caregiver distress, quality of life (QoL) and their predictors in informal caregivers of cancer patients during active treatment and follow‐up. Methods: This cross‐sectional descriptive study targeted primary caregivers of patients with different cancer diagnoses. Caregiver‐reported outcomes were measured by the Caregiver Risk Screen (CRS), Distress Thermometer (DT) and Caregiver Quality of Life Index—Cancer (CQOLC).

Mon, 01/24/2022 - 12:46

Associations Between Hospice Care and Scary Family Caregiver Experiences

Context: Hospice deaths in the U.S. are increasing. Dying hospice patients may have rapidly emerging needs the hospice team cannot immediately meet, exposing family caregivers to fright-inducing (i.e., scary) situations. Objectives: To examine relationships between hospice care and family caregiver exposures and psychological responses to witnessing common and distressing patient symptoms near the end of life.

Thu, 01/13/2022 - 12:31

The influence of the individual neuropsychiatric symptoms of people with Alzheimer disease on family caregiver distress-A longitudinal ALSOVA study

<bold>Objectives: </bold>Family caregivers (FCs) face a variety of demands while caring for persons with Alzheimer disease (AD). Longitudinal studies identifying the specific AD-related neuropsychiatric symptoms (NPS) that contribute to FC distress are rare. We analyzed which NPS in association with care recipient and caregiver demographic factors are associated with FC psychological distress over a 36-month follow-up period.<bold>Design: </bold>This is a longitudinal study with annual follow-up.

Wed, 05/29/2019 - 10:44

Association of informal caregiver distress with health outcomes of community‐dwelling dementia care recipients: a systematic review

Background: Most dementia care occurs in the community with support from informal caregivers who are often distressed. Dementia caregiver distress is known to be hazardous to the caregiver's health, but the impact on the dementia care recipient is not well known. Methods: the Medline, Embase, PsycINFO, CINAHL, and Cochrane databases were searched from inception until June 2017 for studies investigating the association of informal caregiver distress with health outcomes of community‐dwelling dementia care recipients.

Sat, 05/04/2019 - 12:24