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Chronic illness

Facilitating support groups for siblings of children with neurodevelopmental disorders using audio-conferencing: a longitudinal feasibility study

Background: Siblings of children with chronic illness and disabilities are at increased risk of negative psychological effects. Support groups enable them to access psycho-education and social support. Barriers to this can include the distance they have to travel to meet face-to-face. Audio-conferencing, whereby three or more people can connect by telephone in different locations, is an efficient means of groups meeting and warrants exploration in this healthcare context. This study explored the feasibility of audio-conferencing as a method of facilitating sibling support groups

Thu, 07/20/2017 - 15:16

Caregiver Experience During Advanced Chronic Illness and Last Year of Life

Objectives To compare the prevalence and predictors of caregiver esteem and burden during two different stages of care recipients' illnesses-advanced chronic illness and the last year of life. Design Longitudinal, observational cohort study.

Thu, 07/20/2017 - 15:15

'Normal disruption': South Asian and African/Caribbean relatives caring for an older family member in the UK

Little has been written on informal care of an older relative among minority ethnic groups in the UK. This paper examines the meanings of being an informal carer of an older family member for South Asian and African/Caribbean carers. The analysis presented here is based on qualitative interviews with 21 African/Caribbean and 15 South Asian carers. Drawing primarily on the notions of biographical continuity, biographical reinforcement and biographical disruption, the meanings of caring are examined.

Thu, 07/20/2017 - 15:12

The impact of early stroke on identity: A discourse analytic study

This article examines the ways in which sufferers talk about early stroke and the effects this chronic condition has on identify. Traditional research into chronic illness has largely used medical, psychiatric or cognitive models. The authors adopt a social constructionist perspective and use a discourse analytic methodology to study data collected via focus group interaction. Analysis of the data collected shows that participants displayed sensitivity about having acquired a potentially 'damaged' sense of self by mitigating negative features of their experiences.

Thu, 07/20/2017 - 15:10

Who cares? A comparison of informal and formal care provision in Spain, England and the USA

This paper investigates the prevalence of incapacity in performing daily activities and the associations between household composition and availability of family members and receipt of care among older adults with functioning problems in Spain, England and the United States of America (USA).

Thu, 07/20/2017 - 15:10

Hospital at home: a resurgence

Swaleh Toofany examines the evolution and possible future options for hospital at home schemes

Healthcare providers are under pressure to deliver cost-effective care to a population that is ageing. Increased longevity means the number of patients with long-term conditions and chronic illness is growing. Expanding the range of services delivered to patients in their homes may provide a solution by keeping patients out of hospital.

Thu, 07/20/2017 - 15:09

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