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Coping behaviour

Why do families relinquish care? An investigation of the factors that lead to relinquishment into out-of-home respite care

BACKGROUND: Families/carers relinquishing the care of family members with a disability into the care of out-of-home respite facilities is an under-researched area in the disability field.

Thu, 07/20/2017 - 15:17

Use of Alzheimer family support group by community-residing caregivers

This paper describes the author’s experience as a new co-facilitator for an Alzheimer’s Disease Family Support Group and reviews the preliminary phase of group practice and the dynamics of the beginning phase of co-facilitating the Alzheimer’s Family Support Group.

Thu, 07/20/2017 - 15:16

A grounded theory longitudinal study of carers’ experiences of caring for people with dementia

Introduction: Increasingly the provision of care for older people with dementia has shifted from institutions to the community. This has resulted in an increase in burden and a reduction in autonomy for those who care for these individuals.

Aims: This study sought to identify, describe and explore the changes in the carers’ experiences of looking after a relative living with dementia, and the effects of caring on the carers’ autonomy and health over time.

Thu, 07/20/2017 - 15:16

A support group for caregivers of patients with frontotemporal dementia

Several recent articles have pointed out that caregivers of patients with frontotemporal dementia (FTD) need counselling and support. To date, however, no support groups have been provided other than those available to caregivers of patients with Alzheimer's disease (AD). At our outpatient unit for cognitive disorders we initiated a specific support group for caregivers of patients with FTD.

Thu, 07/20/2017 - 15:15

Compulsive hoarding: a qualitative investigation of partner and carer perspectives

Objective: This study explores the experiences of family members caring for a person who compulsively hoards.

Design: Ten participants, all ‘key carers’ for a hoarding family member, were interviewed using a semi-structured interview schedule designed for the purpose of the study.

Methods: Transcribed interviews were analysed using interpretive phenomenological analysis.

Thu, 07/20/2017 - 15:14

Change of identity: the psychological and emotional impact of caring for someone with multiple sclerosis

The diagnosis of a chronic progressive condition such as multiple sclerosis (MS) can impact on many aspects of daily life. Living with, and caring for, an individual with such a condition is likely to have emotional and psychological consequences. We carried out semi‐structured interviews with nine partners and analysed the interview transcripts using grounded theory (Strauss & Corbin, 1998), the phase presented in this article formed part of a larger overall study that explored the impact of living with MS for partners and a family.

Thu, 07/20/2017 - 15:14

Coping with caring: profiles of caregiving by informal carers living with a loved one who has dementia

Background and aim: While the number of people suffering from dementia in the Netherlands will double in the next 25 years, there are no plans to expand the capacity of residential care facilities for these patients. This will almost inevitably lead to an increase in the burden placed on informal carers. We investigated how caregivers living with a loved one who has dementia experience their caregiving situation.

Thu, 07/20/2017 - 15:14

Which carers of family members at the end of life need more support from health services and why?

With end of life care a national priority in many countries, and the main place of care the family home, informal family carers are now considered the frontline of primary care. Yet we are insufficiently informed about the needs of carers, both during the time of caring and during bereavement. This study identifies which carers believed they did not get enough support from health services when caring for a terminally ill family member, what factors influenced perceptions of support, and whether inadequate support influenced the carer's health following the death of a family member.

Thu, 07/20/2017 - 15:13

A dementia first aid course for family carers

Many people with dementia are cared for by family members, who will receive little advice or support. This article describes a course developed to help carers deal with frustrating and challenging behaviour. The course provides an overview of dementia, provides coping strategies for carers and introduces cares to mindfulness meditation to help them deal with stress.

Thu, 07/20/2017 - 15:12

Caregiver’s spirituality and its influence on maintaining the elderly and disabled in a home environment

This study examined the role that faith-based organizations play for caregivers in maintaining the elderly and disabled in their homes. The study explored if persons who use religious beliefs and practices cope with caregiver stress better than those who do not use religious beliefs and practices. The study also explored the role of religious coping as a factor affecting decisions to institutionalize, and the role that faith-based practices and organizations play in helping caregivers maintain the elderly and disabled in their homes.

Thu, 07/20/2017 - 15:11