Decision making

This paper examines key challenges and strategies for including older people with dementia in an ethnographic study of quality of life in institutional care settings. The methods of interview and observation are described in relation to meeting four research challenges: verbal communication impairment, memory loss, decision-making capacity, and emotional disposition.

Aims and objectives.  This study explores the role of the carer in treatment decision-making in cancer care.

The article discusses research by Livingston, Leavey, and Manela on dementia and carer involvement and a study by Thuné-Boyle, Sampson, and Jones on the understanding of informal carers' and healthcare professionals of advanced dementia and their attitudes towards end of life care. Livingston's research identified five core problematic areas including accessing dementia-related services, care homes, and legal / financial matters.