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Dementia

Working in partnership with family carers: the importance of learning from carers' experiences

Purpose – This paper aims to discuss professionals working in partnership with family carers and the importance of learning from their experiences in designing and delivering support to themselves and people with dementia. 

Design/methodology/approach – Working in partnership with carers is a key goal of policy and practice. This paper demonstrates how this can work in practice. 

Thu, 07/20/2017 - 15:09

Impact of early dementia on caregivers: a review

Objective: When it comes to dementia, caregiving can have adverse effects on the psychological and physical health of the informal caregiver. As yet, little is known about the impact of caring for a young dementia patient. This review provides an overview of the literature concerning the impact of early onset dementia (EOD) on informal caregivers and on children of EOD patients. The available literature comparing the impact on EOD and late onset dementia (LOD) caregivers will also be provided.

Thu, 07/20/2017 - 15:09

Dementia: Supporting people with dementia and their carers in health and social care

This guideline covers preventing, diagnosing, assessing and managing dementia in health and social care, and includes recommendations on Alzheimer’s disease. It aims to improve care for people with dementia by promoting accurate diagnosis and the most effective interventions, and improving the organisation of services.

Thu, 07/20/2017 - 15:09

Why carers of people with dementia do not utilise out-of-home respite services

While many people with dementia require institutional care, having a co-resident carer improves the likelihood that people can live at home. Although caregiving can have positive aspects, carers still report a high need for respite. Despite this need, the use of respite services for carers of people with dementia is often low. This article investigates carer beliefs regarding out-of-home respite services and why some carers do not utilise them.

Thu, 07/20/2017 - 15:09

Awareness and understanding of dementia in African/Caribbean and South Asian families

The objective of this study was to explore awareness, recognition and understanding of dementia symptoms in families of South Asian and African/Caribbean descent in the UK. In-depth, semistructured interviews were carried out with South Asian and African/Caribbean carers. Interview transcripts were analysed by coding the data into themes and investigating links between them, using the constant comparison approach of grounded theory. Thirty carers of a person with dementia of South Asian and African/Caribbean heritage were interviewed.

Thu, 07/20/2017 - 15:09

Dementia support workers: Bath and North East Somerset

In Bath and North East Somerset, Dementia Support Workers help people with dementia and their carers to live well by providing personalised support and advice. The video describes the benefits of what they do and how their work integrates with other local services.

Thu, 07/20/2017 - 15:09

Attachment representations in people with dementia and their carers: implications for well-being within the dyad

Objectives: The process of developing and living with dementia may activate attachment feelings and behaviours in people with dementia (PwD) and their carers. By obtaining information from both PwD and carer, we aimed to provide information on the nature and concordance of attachment patterns within the dyad and to examine the relative contribution of attachment representations in PwD and carers to the well-being of both parties.

Thu, 07/20/2017 - 15:08

Causes of nursing home placement for older people with dementia: a systematic review and meta-analysis

Up to half of people with dementia in high income countries live in nursing homes and more than two-thirds of care home residents have dementia. Fewer than half of these residents report good quality of life and most older people are anxious about the prospect of moving into a nursing home. Robust evidence is needed as to the causes of admission to nursing homes, particularly where these risk factors are modifiable.

Thu, 07/20/2017 - 15:08

Occupational therapy for caregivers of people with dementia: a review of the United Kingdom literature

Introduction: Caring for a family member with dementia is associated with a wide range of challenges. The national strategy for caregivers highlights the growing need for health professionals to provide support to caregivers of people with dementia. This review aimed to identify the evidence and current role of occupational therapists in supporting caregivers of people with dementia in the community.

Thu, 07/20/2017 - 15:08

‘What I want to do is get half a dozen of them and go and see Simon Cowell’: Reflecting on participation and outcomes for people with dementia taking part in a creative musical project

This paper presents the findings from an evaluation of a creative musical project led by Scottish Opera. The project included people with dementia and their carers in the development, writing, design and performance of a musical production about their experiences of love. The project involved professional singers, artists and choreographers from the opera company. Activities involved practice sessions and performances.

Thu, 07/20/2017 - 15:08