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Early intervention

The relationship between treatment attendance, adherence, and outcome in a caregiver-mediated intervention for low-resourced families of young children with autism spectrum disorder

Background: Rates of participation in intervention research have not been extensively studied within autism spectrum disorder. Such research is important given the benefit of early intervention on long-term prognosis for children with autism spectrum disorder. The goals of this study were to examine how family demographic factors predicted treatment attendance and adherence in a caregiver-mediated randomized controlled trial targeting core deficits of autism spectrum disorder, and whether treatment attendance and adherence predicted outcome.

Tue, 01/31/2023 - 08:10

Responding to families with complex needs: a national survey of child and family health nurses

Aims: The aim of this study was to explore the extent to which Australian child and family health nurses work with families with complex needs and how their practice responds to the needs of these families. Background. Many families with young children face challenges to their parenting capacity, potentially placing their children at risk of poorer developmental outcomes. Nurses increasingly work with families with mental health problems, trauma histories and/or substance dependence.

Tue, 01/10/2023 - 15:45

Using Hybrid Telepractice for Supporting Parents of Children with ASD during the COVID-19 Lockdown: A Feasibility Study in Iran

During the three-month closure of clinics and day centers in Iran due to the coronavirus disease 2019 (COVID-19) lockdown, parents of children with Autism Spectrum Disorder (ASD) became solely responsible for their care and education. Although centers maintained telephone contact, it quickly became evident that parents needed more detailed advice and guidance. Staff from 30 daycare centers volunteered to take part in a two-month online support and training course for 336 caregivers of children with ASD of different ages.

Fri, 01/06/2023 - 16:53

Augmented naturalistic developmental behavioral intervention for toddlers with autism spectrum disorder: A community pilot study

In the United States, all families with children under the age of 3 years with disabilities or delays in development are eligible to receive public Early Intervention (EI) services. Many researchers are investigating Naturalistic Developmental Behavioral Interventions (NDBI), which have shown positive outcomes for young children with ASD. However, NDBIs have been mostly developed and implemented in university laboratories, and their effectiveness when delivered in community settings is not well understood.

Wed, 12/21/2022 - 10:18

Patient and Family Caregiver Considerations When Selecting Early Breast Cancer Treatment: Implications for Clinical Pathway Development

Background: While clinical pathways have been widely adopted to decrease variation in cancer treatment patterns, they do not always incorporate patient and family caregiver perspectives. We identified shared patient and family caregiver considerations influencing treatment preferences/decision making to inform development of a shared decision pathway. Methods: We conducted qualitative interviews with women who completed initial definitive treatment for stage I–III breast cancer and their family caregivers.

Tue, 04/06/2021 - 12:26

Service users' and carers' experiences of engaging with early intervention services: A meta-synthesis review

Aim: The provision and implementation of early intervention for psychosis services (early intervention services [EIS]) has received increasing attention over recent years. Maximizing engagement with EIS is of clinical and economic importance, and exploring the experiences of those who access EIS is vital. Although research has been conducted exploring the experiences of engaging with EIS from both a service user and carer/family member point of view, these data have not been systematically collated to generate new understanding.

Wed, 02/26/2020 - 12:51

Facilitating pathways to care: A qualitative study of the self-reported needs and coping skills of caregivers of young adults diagnosed with early psychosis

Introduction: Caregivers play a critical role in detecting and managing psychotic symptoms before young people diagnosed with early psychosis present to care.

Mon, 02/10/2020 - 17:36

Caregivers as researchers: An evaluation of early positive approaches to support (e-pats) in partnership with family caregiver co-researchers

Introduction: E‐PAtS is a co‐produced and co‐facilitated group‐programme to support caregiver wellbeing and positive development for children with intellectual/developmental disabilities. E‐PAtS has previously been evaluated in traditional ways. This study, explored the process and benefits of training three caregivers as co‐researchers in the evaluation of E‐PAtS.  Methods: Three caregivers were invited to serve as co‐researchers and provided with training/supervision.

Thu, 12/12/2019 - 13:10

Caregiver correlates of patient-initiated violence in early psychosis

Patient-initiated violence may pose a significant risk to the strength and longevity of informal caregiving relationships in psychosis. We aimed to assess caregiver reports of patient-initiated violence in early psychosis and to examine the relationship between violent incidents and appraisals of caregiving, perceived mental wellbeing in caregivers and Expressed Emotion (EE) in the caregiving relationship. Eighty psychosis caregivers were recruited via Early Intervention (EI) psychosis services in London, United Kingdom.

Tue, 06/04/2019 - 14:29

The effects of a community mental health intervention project upon family caregivers of persons with suspected mental illness in the Chinese cultural context

Family members play an important role in caregiving with more emphasis on early intervention for people suffering from mental illness. Using both quantitative and qualitative methods, this study examines the effects of a community mental health intervention project (CoMHIP) on burdens of caregivers who have family members with suspected mental illness. Results showed that family caregivers’ burden and psychological stress level had been reduced (p < .001).

Mon, 06/03/2019 - 12:50

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