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Experience

Impacts of COPD on family carers and supportive interventions: a narrative review

Caring for a relative with chronic disease influences multiple dimensions of family carers' lives. This study aimed to provide an overview of the impacts of chronic obstructive pulmonary disease ( COPD) on family carers and identify interventions aimed at supporting them. A narrative review was conducted. Searches were performed in electronic databases using a combination of keywords. Articles were screened for relevance and selected articles were analysed in two groups considering the study aims. Eighteen articles were selected.

Mon, 09/10/2018 - 12:50

Recognition of preclinical signs of dementia: A qualitative study exploring the experiences of family carers and professional care assistants

Aims and objectives: To identify preclinical signs of dementia by exploring the experiences of family caregivers and professional care assistants. Background: Dementia results in disability, emotional strain and financial loss for people with dementia, family members and nations. Informal identification of social and behavioural risk signifiers could facilitate timely interventions with potential to delay onset of serious disability. Design: A retrospective qualitative approach using a naturalistic interpretive design was used.

Fri, 08/17/2018 - 15:58

Caregiver Experience During Advanced Chronic Illness and Last Year of Life

Objectives To compare the prevalence and predictors of caregiver esteem and burden during two different stages of care recipients' illnesses-advanced chronic illness and the last year of life. Design Longitudinal, observational cohort study.

Thu, 07/20/2017 - 15:15

'Sustaining Place' - a grounded theory of how informal carers of people with dementia manage alterations to relationships within their social worlds

Aims and objectives: This paper presents a theory explaining the processes used by informal carers of people with dementia to mange alterations to their, and people with dementias' relationships with and places within their social worlds.

Thu, 07/20/2017 - 15:14

Unpaid caregiving and paid work over life-courses: Different pathways, diverging outcomes

We investigate the extent to which people's earlier circumstances and experiences shape subsequent life-courses. We do this using UK longitudinal data to provide a dynamic analysis of employment and caregiving histories for 4339 people over 15–20 years between 1991 and 2010. We analyse these histories as sequences using optimal matching and cluster analysis to identify five distinct employment-caregiving pathways. Regression analysis shows that prior to embarking on these pathways, people are already differentiated by life-stage, gender and attitudes towards family and gender roles.

Thu, 07/20/2017 - 15:11

'Fighting for everything': service experiences of people severely affected by multiple sclerosis

Background No previous research exists specifically exploring the needs of those people severely affected by multiple sclerosis (MS).

Methods Semi-structured interviews were conducted with people identified by the referring health or social care professional as being severely affected by their MS and informal carers, in order to explore their perceptions of their illness and care. The data were analysed for themes using the constant comparative approach.

Thu, 07/20/2017 - 15:09

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