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Family caregiver

How does a family caregiver’s sense of role loss impact the caregiving experience?

Background: Family caregivers reportedly have a powerful sense of role loss, which is felt when one senses a change in role or responsibility, relationship distancing, or a changed asymmetry.

Fri, 09/02/2022 - 20:25

Family caregivers’ experiences with tele-rehabilitation for older adults with hip fracture

Background: There is a knowledge gap for implementing tele-rehabilitation (telerehab) after hip fracture. We recently conducted a clinical trial (ClinicalTrials.gov Identifier: NCT02968589) to test a novel online family caregiver-supported rehabilitation program for older adults with hip fracture, called @ctivehip. Objectives: In this qualitative substudy, our objective was to use semi-structured interviews to explore family caregivers experience with the telerehab program.

Fri, 09/02/2022 - 10:42

Psychological consequences for family caregivers of patients receiving hemodialysis: threat or opportunity?

Background: Family caregivers of patients receiving hemodialysis experience physical and psychological disorders. They are unfortunately neglected. Objectives: The aim of this study was to explain the psychological consequences for family caregivers of patients receiving hemodialysis. Methods: This qualitative inductive conventional content analysis research approach was conducted in Tehran, Iran. Nineteen hemodialysis patient caregivers were enrolled via purposive sampling.

Thu, 09/01/2022 - 16:38

Effectiveness of self-administered acupressure for family caregivers of advanced cancer patients with insomnia: A randomized controlled trial

Background: Sleep disturbances are common among family caregivers (FCs) of patients with advanced cancer. Self-administered acupressure can combat insomnia, but no study has been conducted to evaluate its efficacy in caregivers of patients with advanced cancer. Objective: The aim of this study is to investigate whether self-administered acupressure improves sleep quality for FCs of patients with advanced cancer.

Tue, 08/30/2022 - 13:51

Effectiveness of a nurse-delivered (FOCUS+) and a web-based (iFOCUS) psychoeducational intervention for people with advanced cancer and their family caregivers (DIAdIC): study protocol for an international randomized controlled trial

Background: Worldwide, millions of people with advanced cancer and their family caregivers are experiencing physical and psychological distress. Psychosocial support and education can reduce distress and prevent avoidable healthcare resource use. To date, we lack knowledge from large-scale studies on which interventions generate positive outcomes for people with cancer and their informal caregivers’ quality of life.

Sat, 08/27/2022 - 12:26

Effect of Employment Status on the Association Among Sleep, Care Burden, and Negative Affect in Family Caregivers

Objective: To examine the effect of employment status on sleep, care burden, and negative affect among family caregivers (FCs) at home. Methods: An intensive longitudinal design was applied in which 25 FCs underwent in-home assessments for up to 56 days. At baseline, demographic data and employment status were collected. FCs wore a wrist-worn device with an accelerometer to assess objective total sleep time (TST) for consecutive 24-hour periods.

Sat, 08/27/2022 - 11:58

Caregiving adult children’s perceptions of challenges relating to the end of life of their centenarian parents

Background: The number of centenarians in Europe is increasing; many face health impairments. Adult children often play a key role in their care, but there is a lack of research into what it means for these caregiving relatives to be confronted for many years with their parents’ end of life (EOL), dying and death as well as their own advancing age. Objectives: This study aims to analyse the challenges of caregiving adult children regarding their parents’ end of life and the related burdens and barriers they report.

Tue, 08/23/2022 - 18:59

Family Caregiver Experience of Resistance to Care: Occurrence Patterns, Context, and Impact on Caregiver

Background: Although the extant literature identifies resistance to care (RTC) as one of the most frequently reported and impactful caregiver (CG) stressors, typical studies that rely on quantitative measures of RTC do not fully explain how and why RTC negatively influences CGs’ well-being. As such, it is difficult to develop specific intervention strategies to support CGs in dealing with RTC.

Tue, 08/23/2022 - 17:06

Unmet support needs in teenage and young adult childhood brain tumour survivors and their caregivers: “it’s all the aftermath, and then you’re forgotten about”

Background: Teenage and young adult (TYA) survivors of childhood brain tumours and their family caregivers can experience many late effects of treatment that can hamper the transition to living independent lives. Yet, their long-term supportive care needs are largely unknown. We investigated the supportive care needs of TYA survivors and their caregivers and explored the role and perceived use of support.

Fri, 08/19/2022 - 20:38

The social burden experienced by families caring for members living with cancer in KwaZulu-Natal, South Africa

Background: Cancer is a global public health problem and it affects people in different ways. Family caregivers (FCs) play an essential role in caring for patients with cancer, and thus, they experience many caregiver burdens that go unnoticed. Aim: This research study explored the social burden that families experience in providing care to their family members living with cancer. Setting: This study was conducted in Durban and Pietermaritzburg, cities located in KwaZuluNatal, South Africa.

Wed, 08/10/2022 - 15:58

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