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Family involvement

Correlation between burden and quality of life among family caregiver of patients undergoing hemodialysis

Background: In Indonesia, taking care of sick family member is an obligation for other family members. Family caregivers not only involve in patients’ physical health, but also psychological and financial aspect that sometimes also cause burden for them. However, most of them often ignore their health status and wellbeing. Objectives: Therefore, current study aimed to identify the correlation between burden and quality of life among family caregiver of patients having hemodialysis. This was a cross sectional study in 80 family caregivers.

Fri, 08/05/2022 - 21:57

'Triadic' shared decision making in mental health: Experiences and expectations of service users, caregivers and clinicians in Germany

Background: Shared decision making (SDM) in mental health may contribute to greater patient satisfaction and is sometimes associated with better health outcomes. Here, SDM should not only involve service users and clinicians but also involve the service users' caregivers. Aim: This study aimed to achieve better insight into the current SDM patterns of triads of service users, caregivers and clinicians in inpatient mental health care and the three parties' expectations towards the prospects of triadic SDM.

Fri, 07/15/2022 - 20:38

Feeling responsible: Family caregivers' attitudes and experiences of shared decision-making regarding people diagnosed with schizophrenia: A qualitative study

Objective: To explore the attitudes and experiences of family caregivers concerning their involvement in shared decision-making regarding people diagnosed with schizophrenia. Methods: This study used a qualitative descriptive design involving face-to-face semi-structured interviews. Both convenience and purposive sampling were used to recruit family caregivers until no new insights were generated (n = 15). An inductive thematic analysis method was used.

Mon, 05/30/2022 - 22:03

Family involvement in the Namaste care family program for dementia: A qualitative study on experiences of family, nursing home staff, and volunteers

Background: Family caregivers may experience difficulty maintaining meaningful contact with a relative with advanced dementia. Nevertheless, some family caregivers prefer to remain involved in the care of their relative after admission to a nursing home. Family involvement in the care is important but little is known about how this works in practice and what exactly is needed to improve it.

Mon, 05/30/2022 - 13:13

Patient's Cognitive Function and Attitudes towards Family Involvement in Cancer Treatment Decision Making: A Patient-Family Caregiver Dyadic Analysis

Purpose Older patient populations commonly have cognitive impairment, which might impact decisional capacity. We examined patients and family caregivers preferences for family involvement in treatment decision making assuming different level of cognitive impairment, and sought to explore the factors associated with the preferences and the degree to which patients and family members agree on preferences.

Tue, 10/02/2018 - 17:03