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Contributory factors

Looks at how Hertsmere Primary Care Trust and West Herts community health council are developing an initiative to involve patients, carers, families and general practitioners. They invited a fifth of patients to get involved in a shadow patients' forum and was heartened by people's eagerness to give something back.

Thu, 07/20/2017 - 15:12

What will people think

Outlines a research project undertaken in the Dartford and Gravesham area of north west Kent to explore the service-related needs of Asian older people with dementia and their carers. The study was conducted from February 2002 to January 2004, based at a local dementia care charity, and funded by the Mental Health Foundation. Qualitative approaches were used to collect data about existing services and the views and perceptions of key stakeholders including: 7 GPs, 32 health professionals and service managers, 7 carers and 230 members of the local Asian community.

Thu, 07/20/2017 - 15:12

Autistic spectrum disorders toolkit

Autism is a neurodevelopmental disorder that affects at least 1% of the population. There is an urgent need to improve healthcare of people with autism. Research shows that autistic people die on average 16 years earlier than the general population and this increases if they also have learning disabilities. This Autism Toolkit aims to be a 'one stop shop', a user-friendly guide to autism for primary care professionals, people affected by autism, clinical commissioning groups, as well as interested members of the general public.

Thu, 07/20/2017 - 15:12

Dying at home: A qualitative study of family carers’ views of support provided by GPs community staff

Background: Dying at home is the preference of many patients with life-limiting illness. This is often not achieved and a key factor is the availability of willing and able family carers.

Aim: To elicit family carers’ views about the community support that made death at home possible.

Design and setting: Qualitative study in East Devon, North Lancashire, and Cumbria.

Thu, 07/20/2017 - 15:10

Meeting in the middle: improving communication in primary health care consultations with people with an intellectual disability

The increased presence and participation in Australian society of people with an intellectual disability provides challenges for the provision of primary health care. General practitioners (GPs) identify themselves as ill equipped to provide for this heterogeneous population. A major obstacle to the provision of appropriate health care is seen as inadequate communication between the GP and the person with an intellectual disability, who may or may not be accompanied by a carer or advocate.

Thu, 07/20/2017 - 15:09

Do patients really want copies of their GP letters? A questionnaire survey of older adults and their carers

AIMS AND METHOD The National Health Service Plan stated that all correspondence between clinicians would be copied to patients by April 2004. We wanted to find out whether this practice reflected the true desires of their patients. A questionnaire survey was therefore performed in older adults and their carers attending a psychiatric out-patient clinic.

Thu, 07/20/2017 - 15:09

Estimating the prevalence of unpaid adult care over time

To help fulfil their responsibilities towards unpaid carers, service providers need some idea of the carer's situation and how many might require support. This paper argues that estimating the prevalence of unpaid care across service planning and budgeting cycles provides a better indication of the size and composition of the carer population than estimates at a point in time. The article presents prevalence rates of unpaid adult care from the British Household Panel Survey.

Thu, 07/20/2017 - 15:09

Informal carers: the role of general practitioners and district nurses

Six million informal carers provide support for aged and disabled people in the United Kingdom. Government policies suggest that primary care teams are the main support for carers. This postal survey of 300 general practitioners (GPs) and 272 district nurses (DNs) aimed to determine current practice and views on their role in supporting informal carers. In practice, GPs and DNs lack time, resources, and training to provide support, and see themselves in a reactive role only.

Thu, 07/20/2017 - 15:09

Burden on family carers and care-related financial strain at the end of life: a cross-national population-based study

Background: The rising number of deaths from cancer and other life-limiting illnesses is accompanied by a growing number of family carers who provide long-lasting care, including end-of-life care. This population-based epidemiological study aimed to describe and compare in four European countries the prevalence of and factors associated with physical or emotional overburden and difficulties in covering care-related costs among family carers of people at the end of life.

Thu, 07/20/2017 - 15:08

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