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Grief

Therapeutic endings: Reflections on the termination of counselling-based research relationships among patients with cystic fibrosis and their caregivers

Some time and temporarily scholars suggest that separation is one of the most arduous of human experiences. Given what is often a long history of unpleasant relationship endings, the clients of therapy themselves may be particularly susceptible to painful ruptures. Informed by a qualitative approach, I describe and explain how 10 Canadian children living with cystic fibrosis and their caregivers felt at the end of a research-based counselling support programme. At the programmes' end, the participants reluctantly but unquestioningly accepted the decision.

Tue, 01/17/2023 - 09:15

Existence, triggers, and coping with chronic sorrow: a qualitative study of caretakers of children with sickle cell disease in a National Referral Hospital in Kampala, Uganda

Background: Worldwide, sickle cell disease is recognized as one of the major causes of morbidity and mortality. Caregivers and patients with such chronic illnesses experience economic, physical, social and psychological distresses which may lead to chronic sorrow. Chronic sorrow is viewed as a normal reaction to loss, however it can progress to a pathological state such as depression if the coping styles are ineffective.

Mon, 01/16/2023 - 11:55

How Grandparents Experience the Death of a Grandchild With a Life-Limiting Condition

Traditionally, family-focused care extends to parents and siblings of children with life-limiting conditions. Only a few studies have focused on the needs of grandparents, who play an important role in the families of children with illness and with life-limiting conditions, in particular. Interpretative phenomenological analysis was used as the methodological framework for the study. Seven bereaved grandparents participated in this study. Semistructured, individual, face-to-face interviews were conducted.

Wed, 12/21/2022 - 08:40

Family caregivers' perceptions about patients' dying and death quality influence their grief intensity

Aims and objectives: To understand the influence of family caregivers' perceptions about patients' dying and death quality on their grief intensity. Background: Dying patients and their family caregivers face life-limiting illness together, and they work jointly to negotiate shared understandings and mutual adaptation to losses. Methods: Cross-sectional data were collected via an online survey. The manuscript followed the STROBE report guideline. Methods: Family caregivers of patients who had died within 8–365 days prior were recruited.

Fri, 09/02/2022 - 10:36

Expressing grief through metaphors: family caregivers’ experience of care and grief during the Covid-19 pandemic

Background: The COVID-19 pandemic has disrupted thousands of individuals’ experience of caregiving and grief. Objectives: This qualitative study aimed to gain in-dept understanding of family caregivers’ lived experiences of caregiving and bereavement in the context of the COVID-19 pandemic in Quebec, Canada. The study also aimed at providing new insight about caregiving and bereavement by analysing the metaphors family caregivers use to report their experiences.

Thu, 09/01/2022 - 13:02

Explore the Bereavement Needs of Families of Children With Cancer From the Perspective of Health Caregivers: A Qualitative Study

Background: The experience of bereavement is associated with severe physical, psychological, social and spiritual reactions in the parents of children with cancer. Because of that, the families of these children need to receive bereavement services. Objectives: The aim of this study was to explore the bereavement needs of families of children with cancer from the perspective of health caregiver as people who have a close relationship with the child and the family. Methods: This qualitative descriptive study design in.

Thu, 09/01/2022 - 10:19

Silent suffering of the dying and their families: impact of COVID‐19

Death, grief and bereavement all look different in the current COVID‐19 pandemic. Patients and families are suffering as a result of COVID‐19 itself, and the measures required to contain it. As a result, health professionals need to be aware of potential for additional psychological distress, as well as the risk of prolonged grief disorder.

Wed, 06/22/2022 - 10:19

The Role of Advance Care Planning in Cancer Patient and Caregiver Grief Resolution: Helpful or Harmful?

Background: Cancer patients and their family caregivers experience various losses when patients become terminally ill, yet little is known about the grief experienced by patients and caregivers and factors that influence grief as patients approach death. Additionally, few, if any, studies have explored associations between advance care planning (ACP) and grief resolution among cancer patients and caregivers.

Thu, 06/09/2022 - 19:46

Feeling of grief and loss in parental caregivers of adults diagnosed with intellectual disability

Background: The diagnosis of intellectual disability in children can produce complex grief‐related feelings in their parents. Previous studies have focused on the moment of the diagnosis or the early life of the children, and little research has been conducted on their feelings of grief in adulthood. The objective was to analyse the process of grief/loss in parents of adult offspring with intellectual disability. Method: The intentional sampling included sixteen parents who responded to semi‐structured interviews.

Mon, 05/30/2022 - 21:51

The Effectiveness of Bereavement Support for Adult Family Caregivers in Palliative Care: A Meta-Analysis of Randomized Controlled Trials

Purpose: This meta-analysis aimed to summarize and synthesize the effectiveness of bereavement support for adult family caregivers in palliative care. Methods: Meta-analysis was conducted. The databases of the Cumulative Index to Nursing and Allied Health Literature (CINAHL), Cochrane, Embase, Medline, PubMed, Scopus, and Web of Science were comprehensively searched from inception until January 2020.

Fri, 02/11/2022 - 10:50

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