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Many carers need an outside interest, and Susan McGrath explains how this is being achieved in a project in East Sussex

Many carers need an outside interest, and Susan McGrath explains how this is being achieved in a project in East Sussex.

Thu, 07/20/2017 - 15:13

Which carers of family members at the end of life need more support from health services and why?

With end of life care a national priority in many countries, and the main place of care the family home, informal family carers are now considered the frontline of primary care. Yet we are insufficiently informed about the needs of carers, both during the time of caring and during bereavement. This study identifies which carers believed they did not get enough support from health services when caring for a terminally ill family member, what factors influenced perceptions of support, and whether inadequate support influenced the carer's health following the death of a family member.

Thu, 07/20/2017 - 15:13

Carers’ perspectives on the internet: implications for social and health care service provision

To date, little is known about carers’ experience of using online services and informa­tion. Data are reported from the Carers Online national postal survey of 3,014 adult carers and from an assisted access study involving 60 other adults who had been given training and cost-free Internet access at home. Half of the survey respondents reported having used the Internet on at least one occasion for a range of purposes related to both caring and other aspects of their lives.

Thu, 07/20/2017 - 15:13

Population assessment toolkit

An interactive toolkit, developed to support the implementation of the Social Services and Wellbeing (Wales) Act, which provides information and advice to support Local Authorities and Health Boards to undertake an assessment of care and support needs and carers' needs in their local area. The toolkit is in three main sections. Section one (the ‘What’ guide) looks at what is required under the Social Services and Wellbeing (Wales) Act, the benefits of carrying out an assessment, analysing the data, and what should be included in the report.

Thu, 07/20/2017 - 15:12

Carers speak out project: report on findings and recommendations

Carers have a pressing need to be directed to good sources of information, help and support. NHS organisations appear to be consulting with carers much less than the level envisaged in the National Strategy for Carers. There is still too much poor or indifferent consultation practice and service providers appear not to be following known good practice guidelines. Over eight out of ten carers said that caring had a negative impact on their own health. Almost nine out of ten reported that they feel stress, anxiety, depression or loss of sleep, due to being a carer.

Thu, 07/20/2017 - 15:12

What causes problems in Alzheimer's disease: attributions by caregivers. a qualitative study

Objective: To gain insight into caregivers' understanding of the causes of behaviours they find problematic in people with Alzheimer's disease in order to inform the development of educational strategies.

Thu, 07/20/2017 - 15:12

Focus on carers and the NHS: identifying and supporting hidden carers: good practice guide

There are many different organisations working with and supporting carers. This guide can be used by a wide range of professionals in different ways. Whilst the case studies provide examples of the partnership work promoted by Carers Centres, the methodologies given can be used in other partnership work across carers’ services, as well as within health and social work services.

Thu, 07/20/2017 - 15:10

'Mum I used to be good looking... look at me now': the physical health needs of adults with mental health problems: the perspectives of users, carers and front-line staff

This study uses focus groups of users, carers, and structured staff interviews to explore the physical health needs of mental health services users and the barriers that make it hard for them to seek or gain access to services. Results found that despite the inextricable link between physical well-being and mental health, professionals in both primary and secondary care fail to view users holistically. Professional role ambiguity and poor communications result in access difficulties for users and add to the burden felt by carers.

Thu, 07/20/2017 - 15:10

Barriers and supports for exercise participation among adults with Down Syndrome

Examined were the impact of exercise barriers and carer attitudes regarding exercise outcomes on the exercise participation of adults with Down syndrome (DS). The sample included 44 adults age 30 years and older with DS and mild to moderate intellectual disability and their carers (family members or staff). Measures included personal characteristics of the adults with DS (age, level of adaptive behavior, and health status), carer perceived outcomes of exercise for people with DS, socio-emotional barriers, and access barriers to exercising.

Thu, 07/20/2017 - 15:10