Skip to content

Toggle service links

You are here

  1. Home
  2. Hospice care

Hospice care

The Challenges, Emotions, Coping, and Gains of Family Caregivers Caring for Patients With Advanced Cancer in Singapore: A Qualitative Study

Background: Caring for a family member with advanced cancer at home is demanding as the ill family member is likely to have complex physical and emotional needs. There is a paucity of studies on the experience of home family caregivers of people with advanced cancer in the Asian region. Objective: The aim of this study was to describe the experiences of family caregivers caring for a person with advanced cancer at home in Singapore.

Tue, 05/14/2019 - 14:58

Pain Management Concerns From the Hospice Family Caregivers' Perspective

Background: Pain management is a challenging task for family caregivers in home hospice care. However, there are limited studies that examine the challenges regarding pain management in hospice care from family caregivers’ perspectives. Objectives: To identify the challenges related to pain management faced by family caregivers in hospice care and to examine the validity of an existing framework that outlines pain management challenges for hospice family caregivers.

Sun, 03/31/2019 - 17:40

Family Caregivers' Pain Management in End-of-Life Care: A Systematic Review

Context: Pain management was the most identified burden faced by family caregivers in end-of-life caregiving. Objectives: To synthesize current scientific evidence on family caregivers' experience of pain management in end-of-life care. Methods: A systematic review was conducted using CINAHL, Embase, PubMed, and Cochrane Library electronic databases. Data were extracted from each included paper and organized into tables to synthesize the findings.

Mon, 03/25/2019 - 10:40

Life of the Second-Order Patient: Factors Impacting the Informal Caregiver

Informal caregivers (ICs) are forced to make adaptive lifestyle changes to meet the significant demand of caring for loved ones who are terminally ill. Open-ended questions were administered with 26 ICs who cared for loved ones diagnosed with terminal illnesses whose prognosis was less than six months. The results add substantive information to parsimonious literature and demonstrate a correlation with existing studies that coincide with the debilitating effects that caregiving has on the informal carer.

Wed, 02/06/2019 - 09:34

Music therapy and intimacy behaviors of hospice family caregivers in South Korea: A randomized crossover clinical trial

Family caregivers may experience emotional and relational distress due to decreased intimacy and communication with their loved one at end-of-life. The purpose of the study was to examine intimacy behaviors in a family-patient relationship at the end-of-life with the central research question: Is there a difference in frequency of family caregivers’ intimacy acts, defined and recorded as verbal intimacy, affective intimacy, and physical intimacy with their dying loved one when comparing music therapy and chaplaincy?

Mon, 10/22/2018 - 15:07

Communicating Caregivers' Challenges With Cancer Pain Management: An Analysis of Home Hospice Visits

Context: Family caregivers (FCGs) of hospice cancer patients face significant challenges related to pain management.

Tue, 10/16/2018 - 17:01

Communication among cancer patients, caregivers, and hospice nurses: Content, process and change over time

Objective: First, to describe communication of home hospice nurse visits to cancer patient-caregiver dyads. Second, to assess change in communication related to domains of care over the course of visits. Methods: Multi-site prospective observational longitudinal study of audio-recorded home hospice visits (N=537 visits; 101 patient-caregiver dyads; 58 nurses). Communication was coded using the Roter Interaction Analysis System to describe content and process.

Wed, 10/03/2018 - 12:16

What We Do: Key Activities of an Outpatient Palliative Care Team at an Academic Cancer Center

Background: Outpatient palliative care (PC) has been shown to positively impact quality of life and decrease healthcare utilization, but there are limited data describing what activities render these benefits. Objective: Describe the topics addressed by an outpatient PC team during scheduled visits. Design: Longitudinal cohort study. Setting: The Symptom Management Service, an ambulatory PC program at an academic comprehensive cancer center.

Thu, 08/30/2018 - 13:00

Implications for carers of terminally ill patients dying at home

Most terminally ill patients will express a wish to die at home. To achieve this, patients must rely on the support of family carers, who may experience emotional and health difficulties in providing such care, both before and after the death. Healthcare professionals can help to relieve the burden on family carers, and there is guidance available to direct GPs and other community healthcare professionals on providing good anticipatory palliative care for patients, and support for carers.

Thu, 07/20/2017 - 15:15

Caregiver Experience During Advanced Chronic Illness and Last Year of Life

Objectives To compare the prevalence and predictors of caregiver esteem and burden during two different stages of care recipients' illnesses-advanced chronic illness and the last year of life. Design Longitudinal, observational cohort study.

Thu, 07/20/2017 - 15:15