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Hospice care

Life of the Second-Order Patient: Factors Impacting the Informal Caregiver

Informal caregivers (ICs) are forced to make adaptive lifestyle changes to meet the significant demand of caring for loved ones who are terminally ill. Open-ended questions were administered with 26 ICs who cared for loved ones diagnosed with terminal illnesses whose prognosis was less than six months. The results add substantive information to parsimonious literature and demonstrate a correlation with existing studies that coincide with the debilitating effects that caregiving has on the informal carer.

Wed, 02/06/2019 - 09:34

Music therapy and intimacy behaviors of hospice family caregivers in South Korea: A randomized crossover clinical trial

Family caregivers may experience emotional and relational distress due to decreased intimacy and communication with their loved one at end-of-life. The purpose of the study was to examine intimacy behaviors in a family-patient relationship at the end-of-life with the central research question: Is there a difference in frequency of family caregivers’ intimacy acts, defined and recorded as verbal intimacy, affective intimacy, and physical intimacy with their dying loved one when comparing music therapy and chaplaincy?

Mon, 10/22/2018 - 15:07

Communicating Caregivers' Challenges With Cancer Pain Management: An Analysis of Home Hospice Visits

Context: Family caregivers (FCGs) of hospice cancer patients face significant challenges related to pain management.

Tue, 10/16/2018 - 17:01

Communication among cancer patients, caregivers, and hospice nurses: Content, process and change over time

Objective: First, to describe communication of home hospice nurse visits to cancer patient-caregiver dyads. Second, to assess change in communication related to domains of care over the course of visits. Methods: Multi-site prospective observational longitudinal study of audio-recorded home hospice visits (N=537 visits; 101 patient-caregiver dyads; 58 nurses). Communication was coded using the Roter Interaction Analysis System to describe content and process.

Wed, 10/03/2018 - 12:16

What We Do: Key Activities of an Outpatient Palliative Care Team at an Academic Cancer Center

Background: Outpatient palliative care (PC) has been shown to positively impact quality of life and decrease healthcare utilization, but there are limited data describing what activities render these benefits. Objective: Describe the topics addressed by an outpatient PC team during scheduled visits. Design: Longitudinal cohort study. Setting: The Symptom Management Service, an ambulatory PC program at an academic comprehensive cancer center.

Thu, 08/30/2018 - 13:00

Implications for carers of terminally ill patients dying at home

Most terminally ill patients will express a wish to die at home. To achieve this, patients must rely on the support of family carers, who may experience emotional and health difficulties in providing such care, both before and after the death. Healthcare professionals can help to relieve the burden on family carers, and there is guidance available to direct GPs and other community healthcare professionals on providing good anticipatory palliative care for patients, and support for carers.

Thu, 07/20/2017 - 15:15

Caregiver Experience During Advanced Chronic Illness and Last Year of Life

Objectives To compare the prevalence and predictors of caregiver esteem and burden during two different stages of care recipients' illnesses-advanced chronic illness and the last year of life. Design Longitudinal, observational cohort study.

Thu, 07/20/2017 - 15:15

Place of death: preferences among cancer patients and their carers

The place of death of cancer patients has become an important theme in UK cancer and palliative care policy. This paper examines the place of death preferences of 41 terminally ill cancer patients and 18 of their informal carers, living in the Morecambe Bay area of north-west England. We interviewed cancer patients referred to the research team by 13 specialist palliative care professionals; patients had an estimated 3 months of life remaining.

Thu, 07/20/2017 - 15:12

Hospices still outperform hospitals on quality of care at end of life

Bereaved people in England rate the care provided by hospitals at the end of their relative’s life lower than that provided by hospices, care homes, and services in the community, show the results of a survey published by the Office for National Statistics.1

Overall, 75% of bereaved people rated the quality of care of their relative or friend in the last three months of life as outstanding, excellent, or good and 10% as poor, found the annual national survey of bereaved people, VOICES (Views of Informal Carers—Evaluation of Services).

Thu, 07/20/2017 - 15:12

Exploring factors that influence informal caregiving in medication management for home hospice patients

Objective: To explore factors that influence how informal caregivers manage medications as part of caring for hospice patients.

Methods: Semistructured, open-ended interviews were conducted with 23 informal caregivers and 22 hospice providers from 4 hospice programs in the Chicago metropolitan areas. Qualitative analysis was conducted consistent with the grounded theory approach.

Thu, 07/20/2017 - 15:12