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Housing

Two Futures: Financial and Practical Realities for Parents of Living With a Life Limited Child

Today more and more children are living with complex health care needs, many of these children are living with life limiting and/or threatening conditions, some are medically fragile. To live a childhood these children must live in communities and with their families. In most cases this means the child’s carers, their parents, most often their mothers, are required to undertake a great deal of the child’s care.

Wed, 01/11/2023 - 11:52

The Experience of Housing Needs Among Families Caring for Children With Medical Complexity

Background: Caregivers of children with medical complexity (CMC) face many stressors related to their child's medical condition(s). Financial stress and its impact on housing has been reported to be a challenge among this population. However, unique housing challenges specific to CMC, including disability accommodations in the home and housing space and layout, have yet to be examined in the literature. Methods: We conducted 20 individual semistructured interviews with parents of CMC.

Sun, 02/27/2022 - 16:41

Shared Decision Making About Housing Transitions for Persons With Dementia: A Four-Case Care Network Perspective

Background: Persons with dementia (PWDs) and their caregivers often face difficult housing decisions, that is, decisions about their living arrangements, in which the perspectives of all members of the care network should be involved.; Objective: We performed a qualitative data analysis to assess the extent to which housing decisions for PWDs with their formal and informal caregivers correspond to an interprofessional shared decision making (IP-SDM) approach, and what light this approach sheds on their experiences with decision making.; Research Des

Thu, 01/31/2019 - 12:18

Organising and supporting direct payments

This case study gives an example of a well-established direct payments service, managed by Hampshire County Council in partnership with users of direct payments, carers and voluntary sector support agencies.

Thu, 07/20/2017 - 15:24

Staying put: keeping the family home for adults with a learning disability

Valuing People reminds us that 60 percent of adults with learning disabilities are still living at home being supported by relatives. The author investigates how older carers could best use the family home in planning for the future and reviews the different arrangements families can put in place to ensure a son of daughter can continue to live at home.

Thu, 07/20/2017 - 15:23

After a Long-Term Placement: Investigating Educational Achievement, Behaviour, and Transition to Independent Living

This study describes the transition towards independent living of 123 former fostered young people reared for long periods in a private French organisation, SOS Children’s Villages. Three generations of care leavers were analysed through a postal survey and interviews. Their narratives show typical pathways after leaving care. Two-thirds became independent without major problems by the age of 24–25. Analyses have shown that the absence of severe emotional and behavioural disorders, and diplomas obtained, improved their odds of becoming independent.

Thu, 07/20/2017 - 15:21

Choice of where and how you live: how families can create new solutions to a familiar problem

The White Paper Valuing People said the aim for people with learning disability should be choice of where and how you live. This is rarely the experience to date. A publication has been written for family carers, social workers and others who want to find out more about the various housing and support options for people with learning disabilities. It explains the choices, how to go about getting housing and what support people can find. Six individuals and their families allowed us to describe their different ways of creating housing and support arrangements.

Thu, 07/20/2017 - 15:19

Changes in accommodation experienced by people with Down Syndrome and dementia in the first five years after diagnosis

Research that has tracked living situation changes is lacking for people with Down syndrome post-diagnosis of dementia. Extant studies have not considered reasons for a move, the stage at which it happened, and how involved in the decision the person with Down syndrome was. To study this, a postal questionnaire was used with 35 carers of persons with Down syndrome in Scotland who had been diagnosed with dementia during the previous five years.

Thu, 07/20/2017 - 15:13

Policies at odds

Reports how a complaint about a refusal to re-house a carer nearer her mother uncovered a conflict between a council's policies on social services and housing.

Thu, 07/20/2017 - 15:12

Planning for the future with adults with a learning disability living with older carers

Planning for the future for those adults with a learning disability who live with older carers is an important aspect of the White Paper Valuing People (DoH, 2001). Indeed, such planning is essential if crisis situations are to be avoided, particularly the double shock to service users of losing their home at a time when they are also bereaved. Most research about future planning has tended to focus on the perspective of the family carer rather than that of the service user.

Thu, 07/20/2017 - 15:12

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