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Informal caregiver

Improving Uptake of a National Web-Based Psychoeducational Workshop for Informal Caregivers of Veterans: Mixed Methods Implementation Evaluation

Background: Although web-based psychoeducational programs may be an efficient, accessible, and scalable option for improving participant well-being, they seldom are sustained beyond trial publication. Implementation evaluations may help optimize program uptake, but few are performed. When the US Department of Veterans Affairs (VA) launched the web-based psychoeducational workshop Building Better Caregivers (BBC) for informal caregivers of veterans nationwide in 2013, the workshop did not enroll as many caregivers as anticipated.

Sun, 06/05/2022 - 21:09

From Burden to Depressive Symptoms in Informal Caregivers during the COVID-19 Pandemic: A Path Analysis

Background: The objective of this study was to assess the complex relationship between the multiple determinants of the caregiving process, the caregiver burden, and depression during the COVID-19 pandemic in Serbia. Methods: A cross-sectional study was conducted on a nationally representative sample (n = 798) during the COVID-19 pandemic in Serbia from March to September 2020.

Wed, 06/01/2022 - 12:49

Experiences of fear in hospital settings from the perspectives of mental health service users and informal caregivers

Introduction: In the literature, service users and informal caregivers have been critical towards psychiatric inpatient care. However, little is known about their fears related to hospital care. Objectives: We describe service users’ and informal caregivers’ experiences of fear in psychiatric hospital settings. Methods: The data were collected from seven mental health associations located in six Finnish cities.

Mon, 02/28/2022 - 10:46

The Experience of Working With a Faith Community Nurse Liaison of Care in a Primary Care Practice Among Older Adult Clients and Their Informal Caregiver

Background: Informal caregivers of older adults aging in place are at risk for adverse health and financial consequences. This descriptive qualitative study explored the experience of working with a faith community nurse (FCN) liaison of care in a Catholic health care system affiliated primary care practice among older adult clients and their informal caregiver. Methods: Semistructured face-to-face interviews were conducted with nine older adult client–informal caregiver dyads, three clients, and one caregiver (n = 22).

Sun, 02/27/2022 - 17:17

The effectiveness of ROM (Range of Motion) mobilization education on informal caregivers of stroke patients in the inpatient room

Introduction: Stroke is a neurologically deficit acute disease attributable to a focal vascular cause and is one of the leading causes of disability and death. Disability caused by stroke has a major impact on the family members as their formal caregivers, who in turn have to provide the treatment and care with sufficient knowledge. The purpose of this study was to determine the effectiveness of education on ROM (Range of Motion) mobilization techniques to the informal caregivers on stroke patients in the care room of RUSD Dr. Soekardjo, Tasikmalaya.

Sat, 02/12/2022 - 16:38

Caregiving burnout of community-dwelling people with dementia in Hong Kong and New Zealand: a cross-sectional study

Background: Informal caregiving for people with dementia can negatively impact caregivers’ health. In Asia-Pacific regions, growing dementia incidence has made caregiver burnout a pressing public health issue. A cross-sectional study with a representative sample helps to understand how caregivers experience burnout throughout this region. We explored the prevalence and contributing factors of burnout of caregivers of community-dwelling older people with dementia in Hong Kong (HK), China, and New Zealand (NZ) in this study.

Tue, 01/25/2022 - 14:42

Caregiver distress and quality of life in primary caregivers of oncology patients in active treatment and follow‐up

Objective: As the number of informal caregivers and their caregiving responsibilities increase, this study aims at evaluating caregiver distress, quality of life (QoL) and their predictors in informal caregivers of cancer patients during active treatment and follow‐up. Methods: This cross‐sectional descriptive study targeted primary caregivers of patients with different cancer diagnoses. Caregiver‐reported outcomes were measured by the Caregiver Risk Screen (CRS), Distress Thermometer (DT) and Caregiver Quality of Life Index—Cancer (CQOLC).

Mon, 01/24/2022 - 12:46

Assessment of alternative methods for informal caregivers to perform patient repositioning tasks

Background: Manual patient handling tasks put formal and informal caregivers at risk of musculoskeletal injury. Intervention research to reduce risks to informal caregivers is limited. Design: This study examined effects of slide sheet use when individual informal caregivers performed patient boosting and turning tasks. Three methods of slide sheet use and a baseline method (no slide sheet) were compared, to reposition a 70 kg individual.

Tue, 01/11/2022 - 19:51

Age-dependency in mortality of family caregivers: a nationwide register-based study

Background: Evidence on family caregivers' health is conflicting. Aim: To investigate all-cause and cause-specific mortality in Finnish family caregivers providing high-intensity care and to assess whether age modifies the association between family caregiver status and mortality using data from multiple national registers.

Tue, 12/14/2021 - 15:13

Caregiving burden among informal caregivers of African American cancer survivors

Purpose Relatively little is known about caregivers of African American cancer survivors. Our goal was to identify the extent of burden among this group of caregivers. Methods Responses from 560 informal caregivers of African American participants of the Research on Cancer Survivors (ROCS) study in Detroit, MI, were analyzed including demographics, assistance provided including activities of daily living (ADLs) and instrumental activities of daily living (IADLs), time spent in caregiving, and caregiver burden (CGB).

Fri, 07/23/2021 - 16:31