Skip to content

Toggle service links
Subscribe to RSS - Information resources

You are here

  1. Home
  2. Information resources

Information resources

Defining Essential Elements of Caregiver Support in Gynecologic Cancers Using the Modified Delphi Method

PURPOSE: Family caregivers are instrumental to patients with gynecologic cancer and can be deeply affected by the demands of caregiving. Our aims were as follows: (1) increase awareness of unmet needs of caregivers and (2) identify and prioritize the unmet needs of caregivers and essential support services to be provided in gynecologic cancer centers.

Tue, 06/18/2019 - 15:03

Palliative Care — Online Resources for Patients, Families, and Caregivers

The article focuses on preventing or alleviating suffering in patients with serious illness using palliative care program. It mentions about providing effective palliative care treatment for improving quality of life for the patient and to provide support for family and caregivers; and offering hospice care to the patients related to issues such as nutrition and hydration.

Wed, 06/05/2019 - 12:51

Health sciences library outreach to family caregivers: a call to service

This commentary discusses the information needs of family caregivers and care recipients in the United States. Health sciences library services and outreach activities that support family caregivers include: (1) advocacy, (2) resource building, and (3) programming and education. Ethical issues related to the privacy and confidentiality of clients are outlined in the commentary for information service providers.

Fri, 10/19/2018 - 16:26

Family Caregivers: A qualitative study to better understand the quality-of-life concerns and needs of this population

BACKGROUND: While providing physical, psychological, and spiritual care to their loved ones with cancer, family caregivers (FCGs) are physically and emotionally vulnerable to the tolls of caregiving. Patients and FCGs experience the uncertainty that comes with illness and treatment, its side effects, the lack of control, the emotional upheaval, the spiritual doubt, and the helplessness of advancing disease.

Wed, 10/03/2018 - 12:54

Resource pack designed for young carers

Barnardo’s, the children’s charity, has produced a revised version of its resource pack, Keeping the Family in Mind, after the first 500 packs sold out.

Thu, 07/20/2017 - 15:23

Adapting a SSKIN bundle for carers to aid identification of pressure damage and ulcer risks in the community

If pressure damage is identified and addressed at an early stage, it may be reversed. Otherwise, it may quickly progress into a serious deep tissue injury. In the community, most daily skin care is undertaken by formal and informal carers. They therefore need to know how to identify signs that pressure ulcers may develop and what immediate actions to take. NICE guidance on pressure ulcer prevention is too extensive to be a simple tool for carers, so a SSKIN bundle was adapted for community use.

Thu, 07/20/2017 - 15:21

Resources

Presents a list of medicine and health research sources selected by the editorial board for the October 2004 to April 2005 issue of the magazine "Research Matters." "A Better Life: Private Sheltered Housing and Independent Living for Older People"; "New Lifestyles in Old Age: Health, Identity and Well-Being in Berryhill Retirement Village"; "Young Carers in the UK: The 2004 Report"; The Commercial Exploitation of Children and Young People: An Overview of Key Literature and Data; "Images of Abuse: A Review of the Evidence in Child Pornography."

Thu, 07/20/2017 - 15:20

Caring for carers: how community nurses can support carers of people with cancer

There are more than 1 million people in the UK looking after a family member or friend with cancer, but half the number of these carers do not receive support to care. Providing this care significantly affects cancer carers emotionally, physically, and financially. Community and district nurses have a vital role to play in reaching out to these hidden carers and signposting them to the correct support. This article provides tips on identifying carers, including who they are, the challenges they face, and how health professionals can approach and speak to them.

Thu, 07/20/2017 - 15:16

Carers and the digital divide: factors affecting Internet use among carers in the UK

This paper presents data from a cross-sectional survey of 3014 adult carers, examining use of the Internet and factors associated with it. Carers recruited from the databases of three local authorities and other carer organisations within their geographical boundaries and that of Carers UK, a national carers organisation, were sent a postal questionnaire (response rate: 40%).

Thu, 07/20/2017 - 15:13

A framework for understanding user requirements for an information service: defining the needs of informal carers

The aim of this research was to develop a conceptual framework that would help to collect and understand the information needs of a target community. Even though many information behavior frameworks already exist, they tend to focus on different aspects of the person and their interaction with information. It was proposed that a synthesis of the existing frameworks could lead to one comprehensive framework. Previous research was analyzed and an initial framework defined.

Thu, 07/20/2017 - 15:13

Page 1 of 2