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Literature reviews

Night respite care: relieving the burden on people caring for relatives with dementia

There are few published reports of night-time respite care for people with dementia. The authors review the literature on effectiveness of respite care and report on an audit of the Bexley ACE Night Centre. Night-time respite care is well received by carers who say that it helps them cope better and for longer with relatives who have dementia. Many carers say they would be willing to pay for the service if it were not free. They argue that models of very brief night-time respite should be developed further and researched more fully as they meet an important need of carers. 

Thu, 07/20/2017 - 15:10

Illustrating the importance of including the views and experiences of users and carers in evaluating the effectiveness of drug treatments for dementia

Undertaking a literature review revealed that when evaluating the effectiveness of the drug treatments for dementia few studies purposefully explore the views of users and carers. Their views are mainly derived from secondary analysis of conventional scientific evidence. Where the views of users and carers were explored it was discovered that they evaluate the effectiveness of the drug treatments in terms of quality of life.

Thu, 07/20/2017 - 15:10

Scoping studies: towards a methodological framework

This paper focuses on scoping studies, an approach to reviewing the literature which to date has received little attention in the research methods literature. We distinguish between different types of scoping studies and indicate where these stand in relation to full systematic reviews. We outline a framework for conducting a scoping study based on our recent experiences of reviewing the literature on services for carers for people with mental health problems. Where appropriate, our approach to scoping the field is contrasted with the procedures followed in systematic reviews.

Thu, 07/20/2017 - 15:10

Recent research on physical aggression in persons with intellectual disability: an overview

Physically aggressive behaviours pose major problems to carers supporting people with intellectual disability. This review considers the prevalence and nature of this form of challenging behaviour within this population and describes possible causal factors. Discusses the present status of both behavioural and pharmacological interventions for aggression and outlines the importance of devising reactive management plans for aggressive behaviours.

Thu, 07/20/2017 - 15:10

A synthesis of knowledge about caregiver decision making finds gaps in support for those who care for aging loved ones

We conducted a mixed-methods knowledge synthesis to assess the effectiveness of interventions to improve caregivers' involvement in decision making with seniors, and to describe caregivers' experiences of decision making in the absence of interventions. We analyzed forty-nine qualitative, fourteen quantitative, and three mixed-methods studies. The qualitative studies indicated that caregivers had unmet needs for information, discussions of values and needs, and decision support, which led to negative sentiments after decision making.

Thu, 07/20/2017 - 15:10

Respite care for caregivers and people with severe mental illness: literature review

Aim.  The aim of this study was to review research literature over the past 10 years on respite care for people affected by severe mental illness; and identify key implications for nursing practice in provision of respite care for family caregivers of people with severe mental illness.

Thu, 07/20/2017 - 15:09

Impact of early dementia on caregivers: a review

Objective: When it comes to dementia, caregiving can have adverse effects on the psychological and physical health of the informal caregiver. As yet, little is known about the impact of caring for a young dementia patient. This review provides an overview of the literature concerning the impact of early onset dementia (EOD) on informal caregivers and on children of EOD patients. The available literature comparing the impact on EOD and late onset dementia (LOD) caregivers will also be provided.

Thu, 07/20/2017 - 15:09

The effectiveness and cost-effectiveness of support and services to informal carers of older people: a review of the literature prepared for the Audit Commission

This literature review is concerned with the effectiveness and cost-effectiveness of support and services to informal carers of older people in England and Wales. It has been undertaken by the Personal Social Services Research Unit at the request of the Audit Commission (the Commission). The review is divided into three parts. It begins with an introduction summarising key issues that need to be considered when looking at the effectiveness and cost-effectiveness of services for informal carers.

Thu, 07/20/2017 - 15:09

Occupational therapy for caregivers of people with dementia: a review of the United Kingdom literature

Introduction: Caring for a family member with dementia is associated with a wide range of challenges. The national strategy for caregivers highlights the growing need for health professionals to provide support to caregivers of people with dementia. This review aimed to identify the evidence and current role of occupational therapists in supporting caregivers of people with dementia in the community.

Thu, 07/20/2017 - 15:08

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