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Long-term conditions

Informal carers' experiences and feelings during rehabilitation

The purpose of this study was to explore the experiences and feelings of people caring for patients with long-term diseases in a rehabilitation centre. A qualitative research approach was used. Fifteen informal carers were interviewed. The study was conducted in a rehabilitation centre in Greece. Three themes emerged. The first was feelings regarding the patient and the carers themselves, as well as the type of care provided and life at home after discharge from the rehabilitation unit. The second was experiences regarding health professionals and delivered care, and other carers.

Fri, 09/20/2019 - 12:29

Measuring carer burden in informal carers of patients with long-term conditions

Introduction: The aim of this literature review is to identify the most common tools used to measure burden in carers of people with Parkinson's disease (PD), heart failure (HF), multiple sclerosis (MS) and chronic obstructive pulmonary disease (COPD). Method: Databases such as Medline, PsycINFO, CINAHL and Academic Search Complete were searched. Studies in which carer burden was measured were included.

Wed, 04/10/2019 - 14:58

Implementation of a multidisciplinary psychoeducational intervention for Parkinson's disease patients and carers in the community: study protocol

Background Parkinson’s disease progressively limits patients at different levels and as a result family members play a key role in their care. However, studies show lack of an integrative approach in Primary Care to respond to the difficulties and psychosocial changes experienced by them. The aim of this study is to evaluate the effects of a multidisciplinary psychoeducational intervention focusing on improving coping skills, the psychosocial adjustment to Parkinson’s disease and the quality of life in patients and family carers in a Primary Care setting.

Wed, 04/03/2019 - 14:56

Development of Measure Yourself Concerns and Wellbeing for informal caregivers of people with cancer—a multicentred study

Purpose Measure Yourself Concerns and Wellbeing (MYCaW) is a validated person-centred measure of the concerns and wellbeing of people affected by cancer. Research suggests that the concerns of informal caregivers (ICs) are as complex and severely rated as people with cancer, yet MYCaW has only been used to represent cancer patients’ concerns and wellbeing. This paper reports on the development of a new qualitative coding framework for MYCaW to capture the concerns of ICs, to better understand the needs of this group.

Mon, 04/01/2019 - 14:35

The role of telemonitoring in caring for older people with long-term conditions

Long-term conditions have a negative effect on the lives of older people and those who care for them. As the population ages, so the prevalence of long-term conditions increases, which presents substantial challenges to providers of health and social care. This article examines how telemonitoring could help to meet some of these challenges. Telemonitoring involves patients at home recording vital signs, for example, blood pressure and pulse, and transmitting this information electronically to nurses based elsewhere.

Thu, 07/20/2017 - 15:10