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Feeling of grief and loss in parental caregivers of adults diagnosed with intellectual disability

Background: The diagnosis of intellectual disability in children can produce complex grief‐related feelings in their parents. Previous studies have focused on the moment of the diagnosis or the early life of the children, and little research has been conducted on their feelings of grief in adulthood. The objective was to analyse the process of grief/loss in parents of adult offspring with intellectual disability. Method: The intentional sampling included sixteen parents who responded to semi‐structured interviews.

Mon, 05/30/2022 - 21:51

Being a Former Carer: Impacts on Health and Well-Being

In the United Kingdom, policy has formalized the role of carers through the introduction of new rights and entitlements to support. However, this support is directed only at current carers with the needs of former carers being unacknowledged. Yet, when caregiving comes to an end, the transition to a life as a “former” carer can be challenging. This article reports findings from a small-scale qualitative study about the experiences of former carers conducted in the United Kingdom.

Wed, 06/05/2019 - 15:25

Dementia caregivers’ coping with pre-death grief: effects of a CBT-based intervention

Objectives: Pre-death grief plays a significant role in dementia caregiving, and has adverse impacts on caregivers. It was the purpose of the present study to examine whether a cognitive-behavioural intervention including a grief intervention module could increase caregivers’ coping with pre-death grief and whether these effects could be maintained as of a six-month follow-up assessment.

Wed, 05/01/2019 - 12:50

Korean-American family postcaregivers on dementia caregiving: a phenomenological inquiry

The purpose of this article is to understand dementia caregiving and postcaregiving experience from the Korean-American family caregiver perspective. In this transcendental phenomenological study, I analyzed both in-depth interviews from 8 caregivers and field notes with the procedure of Moustakas' (1994) modification of the Van Kaam method.

Thu, 07/20/2017 - 15:13