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Development of a conceptual framework of positive aspects of caregiving in dementia

Research on family caregivers usually focuses more on stress and burden, especially in the context of looking after a person with dementia. This leads to fewer considerations of positive aspects of care giving. Thus enhancing these positive aspects represents an innovative approach to caregivers' support. Furthermore, these aspects need more conceptualisation to underpin the development of such an approach. This article proposes a conceptual framework of the positive aspects of care giving based on an integrative literature review.

Thu, 07/20/2017 - 15:12

Support for family carers of children and young people with developmental disabilities and challenging behaviour: what stops it being helpful?

Background  Many family carers find the support they receive in respect of their child's challenging behaviour unhelpful. This study sought to identify carer perceptions of the ways in which support is unhelpful and how it could be more helpful.

Methods  Thirteen mothers, caring for a child with intellectual disability and challenging behaviour, were interviewed. Parental perceptions and concerns regarding support received were investigated. Transcribed interviews were analysed using interpretive phenomenological analysis.

Thu, 07/20/2017 - 15:12

The daily grind of the forgotten heroines: experiences of HIV/AIDS informal caregivers in Botswana

With the increasing number of people living with HIV/AIDS and the escalating costs of health care, there is an increasing demand for informal caregiving in the community. Currently, much emphasis is placed on individuals who are living with HIV/AIDS (in terms of the provision of social, psychological and economic support), but very little attention has been paid to the well-being and quality of life of informal caregivers. Lack of support and care for caregivers may have a negative impact on the quality of care and effective services for individuals living with HIV/AIDS.

Thu, 07/20/2017 - 15:12

Quality of life of Australian family carers: implications for research, policy and practice

As part of an international, multicentered project, the burden of care, health, and subjective well-being experienced by select Australian family carers supporting a relative with disability at home were investigated. Some 448 family carers residing in New South Wales and Tasmania completed a battery of instruments, including a self-report demographic survey, the Family Caregiver Burden Inventory, the General Health Questionnaire, and the Personal Wellbeing Index.

Thu, 07/20/2017 - 15:12

The impact of caring on caregivers' mental health: a review of the literature

This paper provides a brief overview of the literature on the impact of caring on the mental health of informal caregivers in the areas of aged care, disability and mental health. Factors discussed that may impact on caregivers' mental health include the relationship between the caregiver and care recipient, the nature of the care recipient's disability and the stage of the caregiving process. Several moderators of the impact of caring on mental health are described, including socio-economic factors, social support and coping strategies.

Thu, 07/20/2017 - 15:12

Cost effectiveness of a manual based coping strategy programme in promoting the mental health of family carers of people with dementia (the START (STrAtegies for RelaTives) study): a pragmatic randomised controlled trial

Objective To assess whether the START (STrAtegies for RelatTives) intervention added to treatment as usual is cost effective compared with usual treatment alone. Design Cost effectiveness analysis nested within a pragmatic randomised controlled trial. Setting Three mental health and one neurological outpatient dementia service in London and Essex, UK. Participants Family carers of people with dementia. Intervention Eight session, manual based, coping intervention delivered by supervised psychology graduates

Thu, 07/20/2017 - 15:12

Emotional over-involvement can be deleterious for caregivers' health: Mexican Americans caring for a relative with schizophrenia

The study of emotional over-involvement (EOI) has focused primarily on its relationship with patients' course of illness. The authors know little about the predictors and possible consequences of EOI for caregivers. Based on past research, they tested the hypotheses that EOI is associated with worse physical and psychological health among caregivers and examined whether caregiver burden and social support may mediate this relationship.

Thu, 07/20/2017 - 15:11

Early intervention in psychosis: client and carer perspectives

AIM: To evaluate service users' and carers' views on the early intervention in psychosis service in relation to best-practice guidelines. METHOD: Both groups were sent a questionnaire on their experiences of care provided. RESULTS: The majority responded positively to many items, indicating they thought the team met best-practice guidance.

Thu, 07/20/2017 - 15:11

The effect of change in mental disorder status on change in spousal mental health: the HUNT study

Longitudinal research on caregiver burden related to mental disorders based on representative samples is scarce. Previous results on the development of burden over time are inconsistent. This article aims to establish whether change in mental disorder status in the index persons predicts subjective burden in their spouses in terms of changed mental health over a period of 11 years.

Thu, 07/20/2017 - 15:11

Informal care, health and mortality

Informal care provision is an activity in which individuals are increasingly likely to become involved across their life course, and particularly in later life, as a result of demographic changes such as increasing longevity and changes in co-residential living arrangements in later life. Academic research so far has highlighted the adverse impact of informal care provision on the financial position of the carer, however, the evidence on the impact of informal care provision on the carer's physical, mental and emotional health, and on their mortality, presents a more complex picture.

Thu, 07/20/2017 - 15:11