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mental illness

Development of the carer well-being and support (CWS) questionnaire

Purpose – A psychometrically validated measure is needed to evaluate outcomes in carers of people with mental health problems, including dementia. This study aims to develop and validate the Carer well‐being and support questionnaire (CWS).

Thu, 07/20/2017 - 15:13

Being a parent of an adult son or daughter with severe mental illness receiving professional care: parents' narratives

The aim of this study was to illuminate the meaning of parental care-giving with reference to having an adult son or daughter with severe mental illness living in a care setting. The parents were asked to narrate their relationship to offspring in the past, in the present, and their thoughts and feelings concerning the future. The study was guided by a phenomenological hermeneutic perspective.

Thu, 07/20/2017 - 15:13

Support for family carers of children and young people with developmental disabilities and challenging behaviour: what stops it being helpful?

Background  Many family carers find the support they receive in respect of their child's challenging behaviour unhelpful. This study sought to identify carer perceptions of the ways in which support is unhelpful and how it could be more helpful.

Methods  Thirteen mothers, caring for a child with intellectual disability and challenging behaviour, were interviewed. Parental perceptions and concerns regarding support received were investigated. Transcribed interviews were analysed using interpretive phenomenological analysis.

Thu, 07/20/2017 - 15:12

Research Abstracts: Parents with a mental illness

The article presents abstracts of studies about children who are living with and caring for parents with mental health problems, the pespectives of young carers, parents and professionals about child caregivers, and the experiences and needs of children caring for parents with severe and enduring mental illness.

Thu, 07/20/2017 - 15:12

'He stopped being my husband and became my carer'

Outlines ongoing research into the way care in mental health is constructed by professionals in law and policy, and the impact of those constructions for people who find themselves identified as 'carer' or 'cared for'. The research also looks at how people construct and experience care within their partnerships.

Thu, 07/20/2017 - 15:12

MyCare: the challenges facing young carers of parents with a severe mental illness

Adults with severe and enduring mental health problems are amongst the most marginalised and vulnerable people in our society. In providing care for these individuals, mental health professionals may potentially overlook the fact that many of these people are also parents: • There are an estimated 50,000 – 200,000 young people in the UK caring for a parent with mental health problems. • Many of these young people will provide help and support for a parent. • Some of these young people will be providing care beyond a level that is appropriate for their age. They will be ‘young carers’.

Thu, 07/20/2017 - 15:11

Carers of older adults' satisfaction with public mental health service clinicians: a qualitative study

Aims and objectives: The purpose of our paper was to explore primary caregivers' experience of the way public mental health nurses and other mental health clinicians responded to them as primary carers of older adults with mental illness.

Background: As populations age, the prevalence of mental illness in older adults will increase and the burden of care placed on family carers will intensify. While family carers are essential to the well-being and quality of life of older adults with mental illness, they frequently experience marginalisation from clinicians.

Thu, 07/20/2017 - 15:11

Choice literature review: a review of the literature and consultation on choice and decision-making for users and carers of mental health and social care services

This literature review on choice in mental health was commissioned by the Department of Health in July 2005 and submitted to the Department in January 2006. The main part of the review looked at the English language literature on choice in mental health over the past five years. It aimed to identify in particular what tools there are to help people make meaningful choices; what media are effective in facilitating decision-making; and to what extent methods such as advance directives might be used.

Thu, 07/20/2017 - 15:11

Understanding the needs of the family carers of people with dementia

As more people are living longer this growing number of older people means an increase in mental health problems. Twenty-five per cent of people over 85 develop dementia and between ten and sixteen per cent of those over 65 develop clinical depression. In addition, people who developed severe and enduring mental health problems such as schizophrenia when young are now growing older (Audit Commission, 2000). Most people with dementia live in the community. About half are cared for at home by a family carer, usually a spouse or adult child (Keady & Nolan, 1995).

Thu, 07/20/2017 - 15:10

Assessing the Needs of Carers of People with Mental Illness: Lessons from a Collaborative Study

This paper is concerned with improving assessment practices with people who are carers of people with mental illness. It is established that the well-being of carers is negatively impacted by the burden of their caring role, and that the needs of carers are often overlooked and poorly responded to by formal helping services. It is the purpose here to report on findings from the data provided by a subset of participants from a broader collaborative research project that developed and trialled a carer’s assessment tool.

Thu, 07/20/2017 - 15:10