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Methodology

Methods for involving people living with dementia and their informal carers as co-developers of technological solutions

This paper reports on the research methods used in five different projects aimed at supporting people living with dementia in their everyday lives and activities of daily living. In all five projects, people living with dementia and their informal carers were involved. Applied methods ranged from passive involvement in the form of observations to very active involvement consisting of consultation rounds and think-aloud sessions.

Thu, 10/10/2019 - 11:58

Using a Flexible Diary Method Rigorously and Sensitively With Family Carers

Health and social science researchers are increasingly interested in the range of new possibilities and benefits associated with diary methods, particularly using digital devices. In this article, we explore how a flexible diary method, which enables participants to choose the device (i.e., paper notebook, tablet, or computer) and medium (i.e., text, photographs, sketches) through which they narrate their experiences, can be used to promote sensitive and rigorous research engagement with family carers to people with dementia.

Tue, 05/14/2019 - 13:10

The medicines management needs of carers during an episode of mental health crisis

The article reviews the report "National Mental Health Development Unit 2010" highlighting the importance of involving carers particularly in crisis resolution and home treatment teams (CRHT), in managing medicines during a mental health crisis. The authors note the report's recommendation of developing training packages to help carers understand issues and enhance their understanding of mental health conditions and treatment options. They also recommend investigating the needs of young carers.

Thu, 07/20/2017 - 15:24

Extended safety and support systems for people with dementia living at home

Purpose – The purpose of this paper is to highlight the complexity surrounding the implementation of advanced electronic tracking, communication and emergency response technologies, namely, an extended safety and support (ESS) system for people with dementia (pwd) living at home. Results are presented from a Swedish demonstration study (2011-2012) conducted in 24 municipalities.

Thu, 07/20/2017 - 15:20

From Assistance to Prevention: Categorizing Young Carer Support Services in Australia, and International Implications

Young people who provide unpaid care for a relative with chronic illness or disability are a growing focus of public policy and research in Australia and internationally. Support services for these young carers have emerged, but not enough is known about their effectiveness. This article develops an analytical framework that categorizes young carer support services according to their goals and the types of intervention provided. The analytical framework is based on Australian data.

Thu, 07/20/2017 - 15:15

The role of telemonitoring in caring for older people with long-term conditions

Long-term conditions have a negative effect on the lives of older people and those who care for them. As the population ages, so the prevalence of long-term conditions increases, which presents substantial challenges to providers of health and social care. This article examines how telemonitoring could help to meet some of these challenges. Telemonitoring involves patients at home recording vital signs, for example, blood pressure and pulse, and transmitting this information electronically to nurses based elsewhere.

Thu, 07/20/2017 - 15:10