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Outreach nurse support after stroke: a descriptive study on patients' and carers' needs, and applied nursing interventions

Objective: To describe the number and types of problems mentioned by successfully contacted home-dwelling stroke patients and their carers, and nursing interventions applied.

Design: In this multicentre quantitative study in the Netherlands, stroke patients and carers received outreach nurse support consisting of three telephone contacts and one home visit within six months after discharge. Standardized checklists describing a wide range of potential problems were used to record problems and interventions.

Thu, 07/20/2017 - 15:15

Growing older with learning disabilities: the GOLD programme

This paper provides an overview of the GOLD programme at the Foundation for People with Learning Disabilities. It describes the work of the 13 funded projects in a context of wider research concerning ageing and learning disabilities. Particular attention is given to those people living with older family carers and those living in residential services for older people. The picture is of services that offer little confidence for the future, as people with learning disabilities grow older.

Thu, 07/20/2017 - 15:14

Care for the caregivers: a review of self-report instruments developed to measure the burden, needs, and quality of life of informal caregivers

Significant demands are being placed on the informal caregivers of chronically ill patients, including those suffering from cancer. Health care professionals need to be aware of these demands, and they need effective tools to assess the impact these demands place on the caregivers. Over the past 25 years, researchers have developed self-report instruments to assess informal caregivers. These instruments assess various aspects of the caregiving experience, including caregiver burden, needs, and quality of life.

Thu, 07/20/2017 - 15:14

Access to health care for carers: barriers and interventions: report for the National Co-ordinating Centre for NHS Service Delivery and Organisation R & D (NCCSDO)

Background The General Household Survey 2000 shows that approximately 6.8 million adults in Britain provide care to sick or disabled relatives or friends, or the elderly. Carers report high levels of stress, anxiety and depression, as well as general health problems and physical injuries such as strained backs associated with lifting. The more demanding care, the less likely it is that carers will have time to attend to their own health care needs.

Thu, 07/20/2017 - 15:14

Training for Jobcentre Plus: meeting the needs of carers

This article discusses the aims and objectives of the new working-age agency, Jobcentre Plus, and the challenges faced by staff in the former Employment Service and Benefits Agency in delivering on its vision of a work-focused service designed to reach 'hard to help' groups. It looks at the training needs of staff involved in the new service, and how the Jobcentre Plus Stakeholder Forum contributed to identifying them. It considers some of the early successes and problems in this process, and then goes on to explore the needs of one particular client group, carers.

Thu, 07/20/2017 - 15:14

Needs of carers of severely disabled people: are they identified and met adequately?

Objective: To examine the unmet needs of informal carers of community dwelling disabled people and to compare their perspectives to those of disabled people and nominated professionals. It was hypothesised that a poor recognition of carers’ needs could have implications for carers’ well- being and thus their ability to maintain their caring role. Need was defined as a service or a resource that would confer a health or rehabilitation gain.

Thu, 07/20/2017 - 15:13

Are the needs of carers being met?

This paper reports on interviews with 30 carers of working age in north-west England. Respondents revealed a general dissatisfaction with government initiatives and policy. The findings suggest that in the main either the policy, or its implementation at grassroots level, or both have little impact. 

Thu, 07/20/2017 - 15:13

An evaluation of the impact of voluntary sector family support workers on the quality of life of carers of schizophrenia sufferers

An evaluation was conducted of voluntary sector family support workers (FSWs) working with families of schizophrenia sufferers. FSWs completed a diary schedule and interviews were conducted with 15 co-professionals from the FSWs' multi-disciplinary teams and 62 carers from FSWs' caseloads. Carers' problems were assessed using the burden component of the Social and Behavioural Assessment Schedule and the Lancashire Quality of Life Profile. Carers were asked about the type of support received and their satisfaction.

Thu, 07/20/2017 - 15:13

Better safety, better quality of life

Reports on the launch of ASTRID ( A Social and Technological Response to meeting the needs of Individuals with Dementia and their Carers) a European project funded under the Telematics Programme, involving the UK, Norway, Netherlands and Ireland. It aims to research and promote the use of assistive technology, a broad term which covers anything from simple devices for individuals to whole systems of adapting housing.

Thu, 07/20/2017 - 15:13

The important things in life

Decisions made on behalf of people with a learning disability and their families are often made without any input from the people they affect the most. Mencap's 'Listen and Learn' consultation programme was developed to find what is important to people with learning disabilities. The consultation used surveys, focus groups and interviews with people with learning disabilities, their family members or carers, Mencap members of staff and leaders of local Mencap groups.

Thu, 07/20/2017 - 15:13

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