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Taking Refuge in Spirituality, a Main Strategy of Parents of Children with Cancer: a Qualitative Study

Background: Due to the rise in prevalence of childhood cancer the impact on family caregivers is increasing.
Spirituality may be an alleviating factor for improving the quality of parent life. There is a lack of organized spiritual
care in health care facilities, so that this aspect needs more emphasis. Thus this study aimed to evaluate the spiritual
strategy of parents of children with cancer. Materials: This qualitative study was conducted with a conventional content

Mon, 11/14/2022 - 10:40

Optimizing the Meaningful Engagement of Older Adults With Multimorbidity and Their Caregivers as Research Partners: A Qualitative Study

Background: It is widely recognized that the engagement of older adults with multimorbidity and their caregivers as partners in health care research is important and invaluable. Objectives: The objective of this study was to examine how researchers can best engage and support older adults with multimorbidity and informal friend or family caregivers of older adults with multimorbidity as research partners in health care research teams. Methods: The persona-scenario method was used for participants to create fictional stories.

Sat, 09/03/2022 - 12:34

Family caregivers for older persons with dementia offer recommendations to current caregivers: a qualitative investigation

Background and aims: Family members who care for older adults with dementia encounter significant difficulties across many domains. There is limited research in this area; thus, the aim here is to share the actual experiences of 30 family caregivers to other family caregivers and to show how these experiences can provide help and recommendations.

Thu, 09/01/2022 - 12:29

Characteristics of dyadic care types among patients living with multiple chronic conditions and their informal caregivers

Objectives: To examine the distribution of dyadic care types in multiple chronic conditions, compare self-care and caregiver contributions to patients' self-care in each care type and identify the patient and caregiver characteristics associated with each care type. Methods: Secondary analysis of a multicentre, cross-sectional study. Patient-caregiver dyads were enrolled from outpatient clinics and community settings. The Dyadic Symptom Management Type Scale was used to categorize dyads by type.

Wed, 08/24/2022 - 11:03

Exploring the experiences of living with Lewy body dementia: An integrative review

Objectives: Lewy body dementia is a common neurodegenerative dementia with unique challenges in managing day-to-day life. A more in-depth multifaceted picture of the Lewy body dementia lived experience will enable identification of best practice and future research direction. The review aim was to explore experiences of people living with Lewy body dementia and their family carers. Methods: Integrative review method informed by Whittemore and Knafl, supported by the information retrieval framework PALETTE.

Tue, 08/23/2022 - 13:33

Care tasks and impact of caring in primary family caregivers: A cross-sectional study from a nursing perspective

Background: Family caregivers of persons with dementia often experience a negative impact on their health. More studies based on nursing theories are needed to improve the provision of care. Aims: To describe the care provided by family caregivers of persons with dementia and the impact on their health, as well as to analyse how personal variables of caregivers are related to care tasks and their health impact.

Mon, 08/22/2022 - 11:52

Transitions during end-of-life care from the perspective of informal caregivers – A concept analysis using Rodgers' (2000) evolutionary approach

Background: To produce a conceptual and operational definition of transition, in the context of end-of-life care, as experienced by informal caregivers. Methods: The authors used Rodgers' (2000) concept analysis framework to examine this concept. Findings: Common themes emerged using Rodgers' (2000) inductive approach confirming transition for informal caregivers at the end of life as a process comprising the presence of trigger(s)/event(s), awareness, instability and engagement/learning while maintaining normality.

Fri, 07/08/2022 - 18:18

Training and support for caring for a child's gastrostomy: A survey with family carers

Objective: The aim of this study was to explore family carers' experiences of training and ongoing support for caring for their child's gastrostomy, and to get their views on how this could be improved. Methods: A mixed-methods online survey with 146 family carers (eg, parents, grandparents) who care for a child with a gastrostomy. Family carers rated their own experience of training and support and made recommendations for how training and support could be improved for future families.

Wed, 06/29/2022 - 19:44

Systematic review of factors associated with hope in family carers of persons living with chronic illness

Aims: To identify factors associated with hope in family carers of persons living with chronic illness. Design: A systematic review of quantitative and mixed method studies on hope in carers of persons living with chronic illness. Data Sources: Five electronic databases (Medline, Cumulative Index to Nursing and Allied Health Literature, Web of Science, ProQuest Dissertations and PsycINFO) were searched from inception to 13 July 2020.

Wed, 06/29/2022 - 11:21

Smarthealth technology study protocol to improve relationships between older adults with dementia and family caregivers

Aim: The aim of this study is to develop a Smarthealth system of monitoring, modelling, and interactive recommendation solutions (for caregivers) for in‐home dementia patient care that focuses on caregiver–patient relationships. Design: This descriptive study employs a single‐group, non‐randomized trial to examine functionality, effectiveness, feasibility, and acceptability of the novel Smarthealth system.

Wed, 06/22/2022 - 10:26

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