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The treatment-related experiences of parents, children and young people with regular prescribed medication

Background: Taking regular medication has been shown to have an impact on the daily lives of patients and their families. Objective: To explore the medication-related experiences of patients and their families when a child or young person is prescribed regular medication. Setting A specialist U.K. paediatric hospital. Method: Semi-structured face-to-face interviews of 24 parents/carers, children or young people, who had been taking two or more medications for 6 weeks or longer.

Thu, 12/29/2022 - 15:10

Understanding the bereavement experience of grandparents following the death of a grandchild from a life‐limiting condition: A meta‐ethnography

Aim: To increase understanding of grandparental grief following the death of a grandchild from a life‐limiting condition.

Design: Meta‐ethnography.

Data sources: Academic Search Complete CINHAL, Embase, psycINFO, PubMed and Web of Science, supplemented by manual search strategies (in 2015, updated 2018).Review methodsStudies were appraised and synthesized using the principles of meta‐ethnography.

Wed, 12/21/2022 - 08:43

Parental experiences with a paediatric palliative care team: A qualitative study

Background: Parents of children with a life-limiting disease have to rely on themselves at home while adequate paediatric palliative care is lacking. In several countries, paediatric palliative care teams are introduced to ensure continuity and quality of care and to support the child and the family. Yet, little is known about how parents experience such multidisciplinary teams.

Tue, 12/20/2022 - 11:23