Parents of disabled children

This study explores the lived experience of parents whose children are deafblind and examines whether it can be considered a meaningful occupation. The number of people who are deafblind is growing (Robertson and Emerson 2010), as are the number of parent-carers, yet deafblind research traditionally follows a medical model, focusing on older people (Brennan et al. 2005).

Despite recurring concerns about the role and appropriate support of informal carers, little is known about the parental experience of caring for children with learning disabilities in Ireland. This study describes and analyses the nature and consequences of care and coping among parents of children (<16) with learning disabilities living in the Greater Dublin area.