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"I'm just trying to cope for both of us": Challenges and supports of family caregivers in participant-directed programs

Recently, national attention has focused on the needs of family caregivers providing complex chronic care, noting the necessity to better understand the scope of challenges they encounter. Although a robust body of literature exists about the scope of family caregiving, little is known specifically about the experiences and perspectives of family caregivers who support participant directed (PD) participants, particularly across the caregiving trajectory.

Wed, 06/26/2019 - 12:00