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Patient-centered care

Caregiving at the End of Life: The Challenges for Family Caregivers

In recent years, end-of-life care has been receiving attention in the lay and professional press. Integral to the concerns for patient-centered supportive care is the need to focus on the family caregiver, as they are directly involved in the patient's care. This article describes relevant challenges for the family caregiver, including information about types of care, scheduling and logistics, patient physical care, including symptom management, caregiver emotional and physical health, advance directives, coordination of care, and communication.

Tue, 10/16/2018 - 14:51

A person‐centred approach to family carer needs assessment and support in dementia community care in Western Australia

This feasibility study aimed to identify and address the support needs of family carers (FCs) of people living with dementia and to assess whether the use of the Carer Support Needs Assessment Tool (CSNAT) intervention in home‐based care was acceptable and relevant to FCs. The CSNAT intervention comprised two FC support needs assessment visits, 7 weeks apart, plus associated actions addressing prioritised needs by the Client Care Advisors of a community care service in Western Australia in 2015.

Fri, 08/24/2018 - 12:51

How family caregivers help older relatives navigate statutory services at the end of life: A descriptive qualitative study

Background: A key challenge in meeting the palliative care needs of people in advanced age is the multiple healthcare and social service agencies typically involved in their care. The 'patient navigator' model, originally developed in cancer care, is the professional solution most often recommended to address this challenge. However, little attention has been paid, or is known, about the role that family carers play in enabling their dying relatives to negotiate service gaps.

Thu, 07/05/2018 - 12:51

The impact of location on satisfaction with dementia services amongst people with dementia and their informal carers: a comparative evaluation of a community-based and a clinic-based memory service

Background: The development of effective medication for the treatment of Alzheimer's disease led to an expansion in the use of memory clinics ther clinic-based services for the delivery and monitoring of the drugs. In contrast, there is an increased emphasis on providing home and community based service delivery for a range of illnesses including dementia.

Thu, 07/20/2017 - 15:24

Transforming dementia and end-of-life care by investing in learning and development

The authors reflect on the importance of learning and development for transforming dementia and end-of-life care. Topics discussed include dependency of quality of dementia care on care providers including registered practitioners, support staff and informal carers, focus on person-centred care and building the leadership skills and confidence to influence care given by diverse and multiprofessional team.

Thu, 07/20/2017 - 15:14

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